Title of cohort


English Longitudinal Studies of Ageing

Acronym for cohort


ELSA

Name of Principal Investigator - Title


Prof

Name of Principal Investigator - First name


Andrew

Name of Principal Investigator - Last name


Steptoe

Address of institution -Institution


University College London

Address of institution - Street address


Department of Epidemiology and Public Health, University College London

Address of institution - City


London

Address of institution - Postcode


WC1E 7HB

Country


United Kingdom

Website


http://www.elsa-project.ac.uk/

Contact email


[email protected]

Funding source


Department of Health, Department for Work and Pensions, Department for Transport and National Institute on Aging

Q1a. Please indicate below if your cohort includes or expects to include, incidence of the following conditions?


Neurodegenerative disease in general

Q1b. When are studies on the above condition(s) expected to become possible?


Already possible

Q2a. In a single sentence what is the stated aim of the cohort?


Longitudinal multidisciplinary data from a representative sample of the English population aged 50 and older

Q2b. What distinguishes this cohort from other population cohorts?


Focus on ageing

Q3a. i) Number of publications that involve use of your cohort to date


Q3a.ii) Please give up to three examples of studies to date (Principal Investigator, Institution, Title of Study)


Martin Orrell, University College London, Promoting Independence in Dementia| Christina Victor, Brunel University, Loneliness in Later Life| Michelle Miller, University of Warwick, Sleep Disturbances and Mild Cognitive Impairment in the English Longitudinal Study of Ageing

Q3b. If data on research outputs are already available please paste the publication list/other data or provide a link to where these data are publicly available


http://www.elsa-project.ac.uk/publications

Q3c. If no research has been done as yet, please explain in a few sentences what information (i.e. research findings) you expect will be gained from the population


Q4a. Study criteria: what is the age range of participants at recruitment? Age in years From:


50

Q4a. Study criteria: what is the age range of participants at recruitment? To:


Until death

Q4b. Study criteria: what are the inclusion criteria?


Age and follow Health Survey for England sampling

Q4c. Study criteria: what are the exclusion criteria?


Follow Health Survey for England

Q5. What is the size of the cohort (i.e. how many participants have enrolled)?


Q6a. Please describe what measures are used to characterise participants


Antrhopometric and physical: Blood pressure, grip strength, drug coding, waist and weight measures Balance tests, lung function and height will be dropped from wave 8. Biological: Blood samples Hair and saliva samples dropped in wave 8 Household income Physical health measures Cognitive function measures Psychsocial measures

Q6b. Are there additional measures for participants with a clinical disorder?


Q6c. Are there defined primary and secondary endpoints (e.g. defined health parameters)?


If yes please specify


Q7. What is the study design (select all that apply)?


Longitudinal

Q8. Are your cases matched by


Age

Q9a. Does your study include a specialised subset of control participants?


No

Q9b. If your study includes a specialised subset of control participants please describe


Q10a. i) Please enter the data collection start date


01/03/2002

Q10a. ii) Please enter the data collection end date


Q10a. iii) Is data collection for this study


Data collection ongoing| Data analysis ongoing

Q10b. If data collection is ongoing, are there plans to continue the cohort study beyond the current projected end date?


Q11. Is data collected


Other please specify here


Q12. Is there a system in place to enable re-contact with patients to ask about participation in future studies?


Q13a. Please give information on the format and availability of data stored in a database (1)


Data summarised in database

% available


Q13a. Please give information on the format and availability of data stored in a database (2)


Database is web-based

% available


Q13a. Please give information on the format and availability of data stored in a database (3)


Database on a spreadhseet

% available


Q13a. Please give information on the format and availability of data stored in a database (4)


% available


Other (please specify)


% available


Q13b. Please give information on the format and availability of data held as individual records (1)


Data is held as individual records

% available


Q13b. Please give information on the format and availability of data held as individual records (2)


Data is web-based

% available


Q13b. Please give information on the format and availability of data held as individual records (3)


% available


Q13b. Please give information on the format and availability of data held as individual records (4)


% available


Please specify language used


English

Q14a. Is data available to other groups?


Yes

Q14b. If data is available to other groups what is the access policy/mechanisms for access?


Local/regional access| National access

Q15. What data sharing policy is specified as a condition of use?


Data made publicly available after a specified time point

Q16a. Are tissues/samples/DNA available to other groups?


Q16b i) If yes, please describe below:


Living donors: DNA

Q16b. ii) In what form are tissues/samples/DNA supplied?


Secondary samples: DNA

Q16b. iii) Is the access policy/mechanism for obtaining samples the same as that for obtaining data (Q14 above)?


Q17. Is information on biological characteristics available to other groups?


No

Number of Patients


2500

% of total cohort


50

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