Turkish Alzheimer Prevalence Study

Title of the cohort
Turkish Alzheimer Prevalence Study
Acronym for cohort

Name of Principal Investigator

Title	Professor
First name	Murat
Last name	Emre

Address of institution where award is held

Institution	Istanbul University Istanbul Faculty of Medicine, Department of Neurology, Behavioral Neurology and Movement Disorders Unit
Street Address	Millet Cad. Capa, Sehremini
City	Istanbul
Postcode	34093

Country
Turkey
Website
www.itfnoroloji.org
Contact email
[email protected]
Funding source
Pharma industry
1. The cohort includes, or expects to include, incidence of the following conditions

• Alzheimer’s disease and other dementias

When studies on the above condition(s) are expected to become possible
Already possible
2a. Stated aim of the cohort
Prevalence of dementia in Istanbul
2b. Features distinguishing this cohort from other population cohorts
Door to door survey
3a. i) Number of publications that involve use of cohort to date
4
3a. ii) Up to three examples of studies to date (PI, Institution, Title of Study)

3b. Publication list/link to where data or publications are accessible (if available)

3c. Information (i.e. research findings) expected to be gained from the population cohort

4a. Study criteria: age range of participants at recruitment

Age in years from:	70
To (‘until death’ if applicable):	until death

4b. Study criteria: inclusion criteria
Only community dwelling individuals
4c. Study criteria: exclusion criteria
Subjects with severe communication (ie, aphasia or no knowledge of Turkish) and perceptual (ie, deafness or blindness) problems were excluded from the study.
5. Size of the cohort (i.e. number of participants enrolled)
1,000 – 5,000 participants
6a. Measures used to characterise participants
MMSE, neuropsychological evaluation, DSM IV, NINCDS-ADRDA, CDR
6b. Additional measures for participants with a clinical disorder

6c. Are there defined primary and secondary endpoints (e.g. defined health parameters)
Demented or not
7. Study design

• Prospective cohort
• Cross sectional survey

8. Cases matched by

• Age
• Sex
• Cognitive function

9a. Does the study include a specialised subset of control participants
Yes
9b. If yes, description of specialised subset of control participants

10a. i) Data collection start date
01-10-1999
10a. ii) Data collection end date

10a iii) Data collection for this study is
Closed to new patients
10b. Plans to continue the cohort study beyond the current projected end date

11. Data collected

• Only through the study

12. System in place to enable re-contact with patients for future studies
No
13a. Format and availability of data stored in a database

	Yes/No	% available
Data summarised in database	yes	100
Database is web-based	no
Database on spreadsheet	yes	100
Database is on paper	no
Other (specify)

Language used:
Turkishh and English
13b. Format and availability of data held as individual records

	Yes/No	% available
Data held as individual records	no
Data is web-based	no
Data held on computer based records	yes	100
Data held on cards	no
Other (specify)

Language used:
Turkish and English
14a. Are data available to other groups
Yes
14b. Access policy/mechanisms for access if data are available to other groups

• Apply to PI or co-ordinator at resource

15. Data sharing policy specified as a condition of use
No policy exists
16a. Are tissues/samples/DNA available to other groups
No
16b. i) Description of available tissues/samples/DNA

16b. ii) Form available tissues/samples/DNA are supplied in

16b. iii) Is the access policy/mechanism for obtaining samples the same as that for obtaining data

17. Is information on biological characteristics available to other groups

• No

Turkish Alzheimer Prevalence Study

Population Cohorts
Turkey
Alzheimer’s disease & other dementias