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ONWEBDUALS
ONTology-based Web Database for Understanding Amyotrophic Lateral Sclerosis (Sweden)
www.umu.se
[email protected]
VR
VR
Only through the study
Sweden
No
Not applicable
No requirement to make data publicly available
No
Primary samples: Supplied fresh| Secondary samples: plasma| Secondary samples: DNA
Yes
No
ALS genetic epidemiology and environmental exposure in 4 EU countries Portugal, Germany, Poland, Sweden
0
n/a
1,001-5,000
200-500
Standard neurological measures
Genetic analysis for specified ALS genes
No
Prospective cohort| dna analysis for SOD1 and C9orf72 mutations
Age| Sex| Cognitive function| Genetic results
No
Data collection ongoing
No
No
Database is web-based
Database on spreadsheet (e.g. excel)
No
No
Data is web-based
ONTology-based Web Database for Understanding Amyotrophic Lateral Sclerosis (Sweden)
Motor neurone diseases| Prion disease
Case Control Studies
Sweden
Motor neurone diseases|Prion disease
2016