Register Competence Network Parkinson’s Disease

Register Competence Network Parkinson’s Disease

www.kompetenznetz-parkinson.de
[email protected]

Germany

 demographics, diagnosis, symptomatic, medical, psychological and psychiatric examination, concomitant medication and diseases, medication, imaging, optional assessments: UPDRS, PDQ-39, MADRS, MMSE

Parkinson’s disease

Yes
Data made publicly available after a specified time point
Other access mechanism|Researchers have to ask; data security committee must agree, according to patient agreement details

If available for a subset please specify number of patients and % of total cohort

Yes

Data collection ongoing|Data analysis ongoing
01/01/2001

Yes

No

0

Describe Parkinson patients in standardized follow-ups
Register Competence Network Parkinson’s Disease

Disease Registers
Germany
Parkinson’s disease & PD-related disorders
2016