Dev

DECI DZNE Cognitive Impairment Longitudinal Study www.dzne.de [email protected] Germany No No requirement to make data publicly available No No To build up a cohort of pre-MCI and MCI patient that allow to identify early markers of dementia 0 1-1,000 200-500…

FRONTIER Clinical, imaging and biological investigations of frontotemporal dementia and related conditions www.ftdrg.org [email protected] NHMRC and ARC NHMRC and ARC Only through the study|Through links to medical records Australia Yes Apply to PI or co-ordinator at resource|Local/ regional access|National access|International…

ONWEBDUALS ONWebDUALS: ONTology-based Web Database for Understanding Amyotrophic Lateral Sclerosis (Portugal) [email protected] FCT / Joint Programme – Neurodegenerative Disease Research (FPJ000876-JPND-PS/001/2013) FCT / Joint Programme – Neurodegenerative Disease Research (FPJ000876-JPND-PS/001/2013) Only through the study Portugal No No policy exists…

ASPREE ASPirin in reducing Events in the Elderly: an RCT of low dose aspirin [email protected] NIH NIH Only through the study|Through links to medical records|Through links to other records or registers(Cancer and other registries) Australia No Data made publicly…

PACt-MD Prevention of Alzheimer’s Dementia in High Risk Populations: A Randomized Controlled Trial of a Combination of Cognitive Remediation and Brain Stimulation [email protected] Chagnon Family and Brain Canada (with financial support of Health Canada) Chagnon Family and Brain Canada…

CIMA-Q The Consortium for the Early Identification of Alzheimer’s Disease [email protected] CQDM and Brain Canada (with financial support of Health Canada) CQDM and Brain Canada (with financial support of Health Canada) Only through the study Canada To advance knowledge about…

Epidemiology and Genetics of Alzheimer’s Disease www.osu.cz [email protected] Ministry of Health Ministry of Health Only through the study|Through links to medical records Czech Republic No No policy exists Yes Living donors: DNA Primary Samples: Stabilised samples (frozen or fixed) No…

PARTAGE Case-Control Study on Parkinson’s Disease Among Mutualité Sociale Agricole Affliates in Five Départements [email protected] ANR – ANSES – France Parkinson ANR – ANSES – France Parkinson Only through the study|Through links to other records or registers(drug claim databases) France…

IDEM Case-Control Study on Tracking Nursing Home Patients with Dementia [email protected] PHRC 2009 PHRC 2009 Only through the study|Through links to medical records France Yes Apply to PI or co-ordinator at resource No No To assess the prelevance of systematically…

AiBL The Australian Imaging, Biomarkers & Lifestyle Flagship Study of Ageing [email protected] Only through the study Australia Yes Apply to PI or co-ordinator at resource|Access Committee mechanism|Other access mechanism|International access|Access to industry|Access for pilot studies permitted|Applicant needs to provide…