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Title of the cohort
Boyd Orr Cohort
Acronym for cohort
BO
Name of Principal Investigator
| Title | Prof |
| First name | Richard |
| Last name | Martin |
Address of institution where award is held
| Institution | University of Bristol |
| Street Address | 39 Whatley Rd |
| City | Bristol |
| Postcode | BS8 2PS |
Country
United Kingdom
Website
http://www.epi.bris.ac.uk/boydorr/
Contact email
[email protected]
Funding source
The Medical Research Council, the World Cancer Research Fund, Research into Ageing, United Kingdom Survivors, the Economic and Social Research Council, the Wellcome Trust, and the British Heart Foundation.
1. The cohort includes, or expects to include, incidence of the following conditions
- Alzheimer’s disease and other dementias
When studies on the above condition(s) are expected to become possible
Already possible
2a. Stated aim of the cohort
To investigate the long-term impact of environmental factors in early life on adult chronic disease and function
2b. Features distinguishing this cohort from other population cohorts
detailed records of diet and health in 1930s related to adult health and function
3a. i) Number of publications that involve use of cohort to date
30
3a. ii) Up to three examples of studies to date (PI, Institution, Title of Study)
See BO cohort profile in International Journal of Epidemiology doi:10.1093/ije/dyi124
3b. Publication list/link to where data or publications are accessible (if available)
See BO cohort profile in International Journal of Epidemiology doi:10.1093/ije/dyi124
3c. Information (i.e. research findings) expected to be gained from the population cohort
4a. Study criteria: age range of participants at recruitment
| Age in years from: | 0-19 |
| To (‘until death’ if applicable): | death |
4b. Study criteria: inclusion criteria
living in selected areas in 16 centres accross the UK
4c. Study criteria: exclusion criteria
none
5. Size of the cohort (i.e. number of participants enrolled)
1,000 – 5,000 participants
6a. Measures used to characterise participants
See BO cohort profile in International Journal of Epidemiology doi:10.1093/ije/dyi124
6b. Additional measures for participants with a clinical disorder
See BO cohort profile in International Journal of Epidemiology doi:10.1093/ije/dyi124
6c. Are there defined primary and secondary endpoints (e.g. defined health parameters)
No
7. Study design
- Retrospective cohort
8. Cases matched by
- Other health assessment (specify) / N/A
- None
9a. Does the study include a specialised subset of control participants
Yes
9b. If yes, description of specialised subset of control participants
See BO cohort profile in International Journal of Epidemiology doi:10.1093/ije/dyi124
10a. i) Data collection start date
01-01-1937
10a. ii) Data collection end date
13-07-2011
10a iii) Data collection for this study is
- Data collection ongoing
- Closed to new patients
10b. Plans to continue the cohort study beyond the current projected end date
- No
11. Data collected
- Through links to medical records
12. System in place to enable re-contact with patients for future studies
Yes (participants have given permission to be re-contacted via the PIs to ask if they would participate in further studies)
13a. Format and availability of data stored in a database
| Yes/No | % available | |
| Data summarised in database | yes | 100 |
| Database is web-based | no | |
| Database on spreadsheet | no | |
| Database is on paper | ||
| Other (specify) |
Language used:
english
13b. Format and availability of data held as individual records
| Yes/No | % available | |
| Data held as individual records | yes | 100 |
| Data is web-based | no | |
| Data held on computer based records | no | |
| Data held on cards | no | |
| Other (specify) |
Language used:
english
14a. Are data available to other groups
Yes
14b. Access policy/mechanisms for access if data are available to other groups
- Apply to PI or co-ordinator at resource
15. Data sharing policy specified as a condition of use
No policy exists
16a. Are tissues/samples/DNA available to other groups
No
16b. i) Description of available tissues/samples/DNA
16b. ii) Form available tissues/samples/DNA are supplied in
16b. iii) Is the access policy/mechanism for obtaining samples the same as that for obtaining data
17. Is information on biological characteristics available to other groups
- If available for a subset please specify number of patients and % of total cohort
- 10
Boyd Orr Cohort
Population Cohorts
United Kingdom
Alzheimer’s disease & other dementias