Brains for Dementia Research Biobank

Name of bioresource/bank
Brains for Dementia Research Biobank
Name of Principal Investigator

Title	Professor
First name	Paul
Last name	Francis

Address of institution where award is held

Institution	King’s College London
Street Address	St Thomas Street
City	London
Postcode	SE1 1UL

Country

United Kingdom

Website
www.brainsfordementiaresearch.org.uk
Contact email (e.g. manager or coordinator)
[email protected]
Funding source
Alzheimer’s Society
Alzheimer’s Research UK
Q1 What conditions does your resource cover?

Alzheimer’s disease and other dementias

Motor neurone diseases

Parkinson’s disease

Neurodegenerative disease in general

Q2a What DNA collection does your resources hold?

None

Q2b What cell lines does your resource hold?

None

Q2c What tissue (including post-mortem tissue) does your resource hold?

101-1000 donors

Q3 Are human tissues/samples/DNA from

Post-mortem donors: brain

Post-mortem donors: spinal cord

Q4 Are tissues/samples/DNA from

Healthy individuals/control donors

Patients

Q5 Can samples be linked to clinical (phenotypic) information and if so, is this information:

In a specific study-associated dataset

Collected as part of a specific clinical trial(s)

Q6 In what form are samples supplied?

Primary Samples: Stabilised samples (frozen or fixed)

Q7 Are biomarkers/analytes/biological characteristics already measured and the information available for your samples?

In most samples

Q8 What is the status of your tissue/sample/DNA collection?

Collection ongoing

Q9 What are the rules and procedures for access?

Access Committee mechanism

Local/ regional access

National access

International access

Access to industry

Access for pilot studies permitted

Resource has own ethics approval so usually no need for separate external ethics approval

Brains for Dementia Research Biobank

Biobanks

2011