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ICICLE-PD
Incidence of Cognitive Impairments in Cohorts with Longitudinal Evaluation in Parkinson’s disease
[email protected]
Parkinson’s UK
Parkinson’s UK
Only through study| Through links to medical records
United Kingdom
Yes
Apply to PI or co-ordinator at resource| Access independent of PI| National access| International access| Access for pilot studies permitted
Yes
Living donors: blood| Living donors: blood derivatives| Living donors: DNA| Living donors: cerebro-spinal fluid
Primary Samples: Stabilised samples (frozen or fixed)| Secondary samples: plasma| Secondary samples: DNA| Secondary samples: RNA
Yes
Yes, for all the cohort
1-1,000
Queen’s Square Brain Bank Criteria, medical history, social history, Movement Disorders Society Unified Parkinson’s Disease Rating Scale (MDS-UPDRS) Part II and III, Hoehn and Hahr stage.
Yes, including Non-Motor System Questinniare, Geriatric Depression Scale, Epworth Daytime Sleepiness Scale, Pitsburg Sleep Quality Index, Parkinson’s Disease Questionnaire (PDQ-39) and neuropsychological test.
Yes
Diagnosis of dementia
Prospective cohort
Age| Sex
No
Data collection ongoing| Data analysis ongoing| Closed to new patients
No
Data summarised in database
Database is web-based
Database on spreadsheet (e.g. excel)
No
No
No
Incidence of Cognitive Impairments in Cohorts with Longitudinal Evaluation in Parkinsons disease
Parkinson’s disease
Case Control Studies
United Kingdom
Parkinson’s disease & PD-related disorders
2016