Irish ALS Register

Irish ALS Register

[email protected]

English

Ireland

Hardiman et al Family aggregation of neuropsychiatric disease in ALS Kindreds|Hardiman, McLAughlin, Bradley: Popuation genomics of ALS|Hardiman , Pender: Cognitive subphenotypes in ALS

Clinical Characterization, EMG,

Motor neurone diseases

No
No requirement to make data publicly available
Apply to PI or co-ordinator at resource|Access through collaboration with PI only

Data held on computer based records
No
Data is held as individual records
No

No

University Computer Mainframe

No
No
Data summarised in database

Data collection ongoing|Data analysis ongoing
01/01/1994
Indefinite
No

No

orcid

1001-5000 clinical cases
>200
Population based- longest running ALS Register in the world
Characterization of epidemiologic, clinic and genetic features of ALS in a population based Register
Irish ALS Register

Disease Registers
Ireland
Motor neurone diseases
2016