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Recruitment Period
Sex
Sample Size
Disease Specific
Age
Brain related measures
Functional rating scales
Anthropometric
Physical
Biological Samples
Genotyping
Brain Imaging
Brain banking
Lifestyle
Socio economic
Health service
1958 National Child Development Study
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1958
MF
15,000 to 19,999
0
The 1970 British Cohort Study
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01/04/1970
MF
15,000 to 19,999
0
The 1982 Pelotas (Brazil) Birth Cohort Study
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1982
MF
0 to 4,999
0
A Population Based Prospective Cohort Study to Unravel the Causes of Stroke and Cognitive Decline: A Cross-Cultural Perspective
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2015-18
MF
10,000 to 19,999
>50
Aberdeen Birth Cohort 1921
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1st June 1932
MF
50,000 to 99,999
11
Aberdeen Birth Cohort 1936
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4th June 1947
MF
50,000 to 99,999
11
Aberdeen Children of the 1950s
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1962
MF
10,000 to 19,999
7-12
Ageing in Women and Men: A Longitudinal Study of Gender Differences in Health Behaviour and Health among Elderly
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1994
MF
0 to 4,999
69-88
The Airwave Health Monitoring Study
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2004-2017
MF
50,000 to 99,999
>16
Alberta’s Tomorrow Project
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2000-2015
MF
50,000 to 99,999
35-69
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Diseases
Alzheimer's disease
Dementia (unclassified)
Frontotemporal dementia
Huntington's disease
Lewy body disease
Mild cognitive impairment (MCI)
Motor neurone disease
Other NDs not listed
Parkinson's disease
Prion disease
Spinal muscular atrophy (SMA)
Spinocerebellar ataxia (SCA)
Subjective memory complaints (SMC) or subjective cognitive decline (SCD)
Type of dementia/ND not specified
Vascular dementia
Genders
Female
Male
Male and Female
Sample sizes
0 to 4,999
10,000 to 14,999
10,000 to 19,999
100,000 to 499,999
15,000 to 19,999
20,000 to 49,999
5,000 to 9,999
50,000 to 99,999
500,000+
Ages
0 to 9
10 to 19
100+
20 to 39
40 to 59
60 to 100
Types
General population-based cohort
Neurodegenerative disease-specific cohort
Rare neurodegenerative condition
Participant Types
At-risk diagnosis
Condition diagnosed
No diagnosis
Countries
Albania
Australia
Austria
Belgian
Belgium
Brazil
Canada
Chile
China
Costa Rica
Croatia
Czech Republic
Denmark
Estonia
Finland
France
Germany
Greece
Hong Kong
Hungary
India
Ireland
Israel
Italy
Japan
Luxembourg
Malaysia
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Norway
Poland
Portugal
Romania
Singapore
Slovenia
South Africa
South Korea
Spain
Sweden
Switzerland
Thailand
Tunisia
Turkey
United Kingdom
USA
Brain related measures
Behaviour
Cognitive function
Mental health
Neurological
Funtional rating
Caregiver
Individual physiological
Individual psychological
Anthropometric
Blood pressure
Height
Hip circumference
Waist circumference
Weight
Physical
Cardiovascular
Hearing and Vision
Musculoskeletal
Reproductive
Respiratory
Biological samples
Blood
Cardiovascular
Cerebral spinal fluid (CSF)
CSF biomarker data available
Hearing and vision
If CSF was collected is biomarker data available
Microbiome
Musculoskeletal
Other
Reproductive
Respiratory
Saliva
Urine
Genotyping
Gene screening
Brain imaging
Electroencephalogram (EEG)
Magnetic resonance imaging (MRI)
Magnetic resonance spectroscopy (MRS)
Magnetoencephalography (MEG)
Positron emission tomography (PET) - amyloid
Positron emission tomography (PET) fluorine18 flurodeoxyglucose (FDG)
Single photon emission computerised tomography (SPECT)
Brain banking
Consent for brain donation
Lifestyle
Alcohol
Dietary habits
Physical activity
Smoking
Socio-economic
Education
Ethnic group
Family circumstances
Housing and accommodation
Income and employment
Income and finances
Informal support
Marital status
Martial status
Occupation and employment
Unpaid care
Health service utilisation
Formal health and social care service utilisation including private care
Diseases
Alzheimer's disease
Dementia (unclassified)
Frontotemporal dementia
Huntington's disease
Lewy body disease
Mild cognitive impairment (MCI)
Motor neurone disease
Other NDs not listed
Parkinson's disease
Prion disease
Spinal muscular atrophy (SMA)
Spinocerebellar ataxia (SCA)
Subjective memory complaints (SMC) or subjective cognitive decline (SCD)
Type of dementia/ND not specified
Vascular dementia
Genders
Female
Male
Male and Female
Sample sizes
0 to 4,999
10,000 to 14,999
10,000 to 19,999
100,000 to 499,999
15,000 to 19,999
20,000 to 49,999
5,000 to 9,999
50,000 to 99,999
500,000+
Ages
0 to 9
10 to 19
100+
20 to 39
40 to 59
60 to 100
Types
General population-based cohort
Neurodegenerative disease-specific cohort
Rare neurodegenerative condition
Participant Types
At-risk diagnosis
Condition diagnosed
No diagnosis
Countries
Albania
Australia
Austria
Belgian
Belgium
Brazil
Canada
Chile
China
Costa Rica
Croatia
Czech Republic
Denmark
Estonia
Finland
France
Germany
Greece
Hong Kong
Hungary
India
Ireland
Israel
Italy
Japan
Luxembourg
Malaysia
Multiple Countries
Netherlands
New Zealand
Nigeria
Norway
Poland
Portugal
Romania
Singapore
Slovenia
South Africa
South Korea
Spain
Sweden
Switzerland
Thailand
Tunisia
Turkey
United Kingdom
USA
Brain related measures
Behaviour
Cognitive function
Mental health
Neurological
Funtional rating
Caregiver
Individual physiological
Individual psychological
Anthropometric
Blood pressure
Height
Hip circumference
Waist circumference
Weight
Physical
Cardiovascular
Hearing and Vision
Musculoskeletal
Reproductive
Respiratory
Biological samples
Blood
Cardiovascular
Cerebral spinal fluid (CSF)
CSF biomarker data available
Hearing and vision
If CSF was collected is biomarker data available
Microbiome
Musculoskeletal
Other
Reproductive
Respiratory
Saliva
Urine
Genotyping
Gene screening
Brain imaging
Electroencephalogram (EEG)
Magnetic resonance imaging (MRI)
Magnetic resonance spectroscopy (MRS)
Magnetoencephalography (MEG)
Positron emission tomography (PET) - amyloid
Positron emission tomography (PET) fluorine18 flurodeoxyglucose (FDG)
Single photon emission computerised tomography (SPECT)
Brain banking
Consent for brain donation
Lifestyle
Alcohol
Dietary habits
Physical activity
Smoking
Socio-economic
Education
Ethnic group
Family circumstances
Housing and accommodation
Income and employment
Income and finances
Informal support
Marital status
Martial status
Occupation and employment
Unpaid care
Health service utilisation
Formal health and social care service utilisation including private care
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