Northern Ireland Study of Health and Stress

Title of the cohort
Northern Ireland Study of Health and Stress
Acronym for cohort
NISHS
Name of Principal Investigator

Title Professor
First name Brendan
Last name Bunting

Address of institution where award is held

Institution University of Ulster
Street Address College Avenue
City L’Derry
Postcode BT48 7JL

Country

  • United Kingdom

Website
www.science.ulster.ac.uk/research/psychology/nishs/ –
Contact email
[email protected]
Funding source
Public Health Agency for Northern Ireland, Research and Development Office
1. The cohort includes, or expects to include, incidence of the following conditions

  • Neurodegenerative disease in general

When studies on the above condition(s) are expected to become possible

2a. Stated aim of the cohort
To establish the prevalence and correlates of mental health using DSM and ICD criteria.
2b. Features distinguishing this cohort from other population cohorts
Unique within Northern Ireland, but linked to similar datasets in other countries.
3a. i) Number of publications that involve use of cohort to date
0
3a. ii) Up to three examples of studies to date (PI, Institution, Title of Study)

3b. Publication list/link to where data or publications are accessible (if available)
1. Ferry, F., Bolton, D., Bunting, B., Devine, B., McCann, S. & Murphy, S. (2008). Trauma, Health and Conflict in Northern Ireland. ISBN 978-1-85923-228-6.

2. Kessler et al (in press). Treated and untreated prevalence of mental disorders: Results from the World Health Organization World Mental Health (WMH) Surveys. Oxford Textbook of Community Mental Health and edited by Professor Graham Thornicroft, Professor George Szmukler, Dr Kim Mueser, and Dr Robert Drake. Oxford Press.
3c. Information (i.e. research findings) expected to be gained from the population cohort
Prevalence, severity, comorbidity, age-of-onset, service use, failure and delays in treatment and dropout from treatment services, based on 30 days, 12 months, and lifetime.
4a. Study criteria: age range of participants at recruitment

Age in years from: 18+ years
To (‘until death’ if applicable):

4b. Study criteria: inclusion criteria
Individuals living in the community
4c. Study criteria: exclusion criteria
Non-institutionalised.
5. Size of the cohort (i.e. number of participants enrolled)

  • 1,000 – 5,000 participants

6a. Measures used to characterise participants
DSM and ICD criteria as evaluated using the CIDI.
6b. Additional measures for participants with a clinical disorder
Yes.
6c. Are there defined primary and secondary endpoints (e.g. defined health parameters)

  • No

7. Study design

  • Cross sectional survey

8. Cases matched by

  • Co-morbidities

9a. Does the study include a specialised subset of control participants

  • Yes

9b. If yes, description of specialised subset of control participants
One hundred percent of those who sceened for a condition were included in the long form of the interview, as were 50% of those meeting a ‘subthreshold’ core disorder, and 25% of the remaining sample.
10a. i) Data collection start date
02-02-2004
10a. ii) Data collection end date
30-05-2008
10a iii) Data collection for this study is

  • Closed to new patients

10b. Plans to continue the cohort study beyond the current projected end date

  • Yes – funding applied for

11. Data collected

  • Only through the study

12. System in place to enable re-contact with patients for future studies

  • Yes (participants have given permission to be re-contacted via the PIs to ask if they would participate in further studies)

13a. Format and availability of data stored in a database

Yes/No % available
Data summarised in database  Yes
Database is web-based
Database on spreadsheet  Yes
Database is on paper
Other (specify)

 
Language used:
English
13b. Format and availability of data held as individual records

Yes/No % available
Data held as individual records  Yes
Data is web-based
Data held on computer based records  Yes
Data held on cards
Other (specify)

 
Language used:
English
14a. Are data available to other groups
Yes
14b. Access policy/mechanisms for access if data are available to other groups

  • Access through collaboration with PI only

15. Data sharing policy specified as a condition of use

  • No requirement to make data publicly available

16a. Are tissues/samples/DNA available to other groups
No
16b. i) Description of available tissues/samples/DNA

16b. ii) Form available tissues/samples/DNA are supplied in

16b. iii) Is the access policy/mechanism for obtaining samples the same as that for obtaining data

17. Is information on biological characteristics available to other groups

  • No

Northern Ireland Study of Health and Stress

Population Cohorts
United Kingdom
Neurodegenerative disease in general
2011

 

 

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