Panel Survey of Ageing and the Elderly (PSAE) 2010

Title of the cohort
Panel Survey of Ageing and the Elderly (PSAE) 2010
Acronym for cohort
PSAE
Name of Principal Investigator

Title Prof
First name
Last name

Address of institution where award is held

Institution
Street Address Box 720
City
Postcode SE40530

Country

  • Sweden

Website
http://www.sociology.gu.se/english/?languageId=100001&contentId=-1&disableRedirect=true&returnUrl=http%3A%2F%2Fwww.sociology.gu.se%2F
Contact email
[email protected]
Funding source
FAS
1. The cohort includes, or expects to include, incidence of the following conditions

  • Neurodegenerative disease in general

When studies on the above condition(s) are expected to become possible

  • Already possible

2a. Stated aim of the cohort
Providing an overall broad picture of living conditions, general health, and economic conditions among older Swedes.
2b. Features distinguishing this cohort from other population cohorts
It is not cohort study. It is a population based sample of the Swedish population 55 year of age or older. It is unique because of its breadth, because it facilitate comparisons with younger age group (the database includes a representative sample of the whole adult population), and because of it longitudinal design that makes it possible to trace part of the sample all the way back to 1979.
3a. i) Number of publications that involve use of cohort to date
0
3a. ii) Up to three examples of studies to date (PI, Institution, Title of Study)

3b. Publication list/link to where data or publications are accessible (if available)

3c. Information (i.e. research findings) expected to be gained from the population cohort

4a. Study criteria: age range of participants at recruitment

Age in years from: They were aged 55-99 in 2002/2003. Part of the sample were interviewed in 1979, 1986/87 and 1996/69. We are currently, in 2011 and 2012, collecting new data. We are following the respondents to death and we are also continuously renew our sample in order to maintain a representative sample of the Swedish population.
 To (‘until death’ if applicable):

4b. Study criteria: inclusion criteria
Living in Sweden
4c. Study criteria: exclusion criteria
Death or emigration
5. Size of the cohort (i.e. number of participants enrolled)

  • 5,001 – 10,000 participants

6a. Measures used to characterise participants
No characteristics are used, it is a representative sample.
6b. Additional measures for participants with a clinical disorder
No
6c. Are there defined primary and secondary endpoints (e.g. defined health parameters)

  • No

7. Study design

  • Longitudinal

8. Cases matched by

  • Other health assessment (specify) / N/A
  • No matching

9a. Does the study include a specialised subset of control participants

  • No

9b. If yes, description of specialised subset of control participants

10a. i) Data collection start date
01-01-1979
10a. ii) Data collection end date
31-12-2012
10a iii) Data collection for this study is

  • Data collection ongoing
  • Data analysis ongoing

10b. Plans to continue the cohort study beyond the current projected end date

  • Yes – intend to apply for funding

11. Data collected

12. System in place to enable re-contact with patients for future studies

  • Yes (participants have given permission to be re-contacted via the PIs to ask if they would participate in further studies)

13a. Format and availability of data stored in a database

Language used:

13b. Format and availability of data held as individual records

Language used:

14a. Are data available to other groups
Yes
14b. Access policy/mechanisms for access if data are available to other groups

  • Access independent of collaboration with PI
  • National access

15. Data sharing policy specified as a condition of use

  • Data to be made publicly available immediately

16a. Are tissues/samples/DNA available to other groups
No
16b. i) Description of available tissues/samples/DNA

16b. ii) Form available tissues/samples/DNA are supplied in

16b. iii) Is the access policy/mechanism for obtaining samples the same as that for obtaining data

17. Is information on biological characteristics available to other groups

  • No

Panel Survey of Ageing and the Elderly (PSAE) 2010

Population Cohorts
Sweden
Neurodegenerative disease in general
2011

 

 

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