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The PICNICS study is an observational study tracking the progression of patients with incident Parkinson’s disease over several years to better understand how the disease behaves over time, and establish the pattern of evolution of subtypes of Parkinson’s disease. Understanding differences between subtypes and what drives them will inform development of stratified therapies. The study recruited patients with Parkinson’s disease between 2008 and 2013, and is following them up every 18 months with clinical assessments, cognitive assessments and biological sampling.
Last update – 16/01/2017
Types Neurodegenerative disease-specific cohort
Participant Types Condition diagnosed
Countries United Kingdom
Genders Male and Female
Sample sizes 0 to 4,999
Ages 10 to 19|20 to 39
Brain related measures Behaviour|Cognitive function|Mental health|Neurological
Funtional rating Caregiver|Individual physiological|Individual psychological
Anthropometric
Physical
Biological samples Blood
Genotyping Gene screening
Brain imaging
Brain banking Consent for brain donation
Lifestyle Smoking
Socio-economic Education|Ethnic group|Marital status|Occupation and employment
Health service utilisation
Institute names University of Cambridge
Current Sample Sizes 0 to 4,999
age at recruitment >18
last updated
recruitment period 2008-13
estimated current sample size number value 150
cohort acronym PICNICS Cohort
start date 2008-13
pi Professor Roger Barker
website http://thebarkerlab.co.uk/parkinsons-disease/
contact details John van Geest Centre for Brain Repair,
University of Cambridge,
Forvie Site,
Robinson Way,
Cambridge,
CB2 0PY,
UK.
abstract PICNICS is an observational cohort looking at the progression of Parkinson’s disease over several years. Recruitment began in 2008 of 290 participants over 18 years old.
funders The Cure Parkinson’s Trust
Van Geest Foundation; Parkinson’s UK
National Institute of Health Research Biomedical Research Centre Award to the University of Cambridge
contact email [email protected]
contact phone number +44 (0) 1223 331160
estimated current sample size 0 to 4,999
sample sizes 290