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RISCA
Prospective study of individuals at risk for spinocerebellar ataxia type 1, type 2, type 3 and type 6
http://www.ataxia-study-group.net
[email protected]
Data collection ongoing| Closed to new patients
Germany
Yes, for all the cohort
Clinical scale, timed tests, MRI, electrophysiology
Yes
Manifestation of ataxia
Yes – intend to apply for funding
Spinocerebellar ataxia (SCA)
No
No requirement to make data publicly available
Yes
To enrol and study a cohort of asymptomatic gene carriers for spinocerebellar ataxia
0
1,000-5,000 participants
Prospective cohort
No
01/09/2008
Data collection ongoing| Closed to new patients
Prospective study of individuals at risk for spinocerebellar ataxia type 1, type 2, type 3 and type 6
Already Possible
Population Cohorts
Germany
Spinocerebellar ataxia (SCA)
2016