{"id":20754,"date":"2018-11-15T10:36:25","date_gmt":"2018-11-15T10:36:25","guid":{"rendered":"http:\/\/www.neurodegenerationresearch.eu\/?p=20754"},"modified":"2018-11-15T10:36:25","modified_gmt":"2018-11-15T10:36:25","slug":"2018-call-results-health-and-social-care-for-neurodegenerative-diseases","status":"publish","type":"post","link":"https:\/\/neurodegenerationresearch.eu\/sv\/2018\/11\/2018-call-results-health-and-social-care-for-neurodegenerative-diseases\/","title":{"rendered":"2018 Call Results – Health and social care for neurodegenerative diseases"},"content":{"rendered":"

The EU Joint Programme on Neurodegenerative Disease Research (JPND) has awarded funding to ten multi-national research teams in order to increase understanding of the factors that contribute to the quality and delivery of health and social care\u00a0for neurodegenerative diseases.<\/strong><\/p>\n

Current research suggests strong potential for improving quality of life for those living with neurodegenerative diseases such as Alzheimer\u2019s disease and Parkinson\u2019s disease, with novel health and social care concepts and innovations focusing on the preservation of dignity, independence and social inclusion. Nevertheless, the availability and quality of such services vary considerably across Europe and beyond.<\/p>\n

JPND has selected ten teams with ambitious, innovative and multi-disciplinary collaborative projects that address health and social care at both the macro level of systems and infrastructures and the individual level of patients, carers and families.<\/p>\n

\u201cWhile waiting for new treatments to emerge from basic and translational research, we need to support projects that could deliver immediate impactful developments which health and social care research and innovation may be able to achieve. This includes new insights that point to the potential for improved patient empowerment, civic participation and quality of life,\u201d said Professor Philippe Amouyel, Chair of JPND.\u00a0\u201c<\/strong>Our hope is that this work will lead to the adoption of novel health promotion strategies that will reduce the impact of disease for patients as well as for their families and carers.\u201d<\/p>\n

The ten projects were recommended for funding by an independent, international Peer Review Panel based on scientific excellence with input from the JPND advisory board on patient and public involvement.\u00a0Proposals are presented in alphabetical order according to their acronym.<\/p>\n

Visit the call page here.<\/a><\/p>\n

ADDITION<\/strong>
\nAlzheimer\u2019s disease data-driven insights on individual outcomes of importance<\/p>\n

Coordinator:<\/strong>
\nLinus J\u00f6nsson, Karolinska Institutet, Sweden<\/p>\n

Partners:<\/strong>
\nWiesje van der Flier, VU University Medical Center, The Netherlands
\nCarole Dufouil, INSERM, University of Bordeaux, France<\/p>\n

 <\/p>\n

COGNISANCE<\/strong>
\nCO<\/strong>-desiG<\/strong>ning demeN<\/strong>tia dI<\/strong>agnoS<\/strong>is\u00a0AN<\/strong>d post-diagnostic\u00a0C<\/strong>arE<\/strong>
\n
\nCoordinator:<\/strong>
\nHenry Brodaty, University of New South Wales, Australia<\/p>\n

Partners:<\/strong>
\nLee-Fay Low, University of Sydney, Australia
\nIsabelle Vedell, McGill University, Canada
\nFrans Verhey F, Maastricht University, The Netherlands
\nGreta Rait, University College London, United Kingdom
\nLouise Robinson, Newcastle University Institute for Ageing, United Kingdom
\nJoanna Rymaszewska, Wroclaw Medical University, Poland<\/p>\n


\nDOMINO-HD<\/strong>
\nMulti-Dom<\/strong>ain Lifestyle Targets for\u00a0I<\/strong>mproving ProgNO<\/strong>sis in\u00a0H<\/strong>untington\u2019s\u00a0D<\/strong>isease<\/p>\n

Coordinator:<\/strong>
\nMonica Busse, Centre for Trials Research, Cardiff University, United Kingdom<\/p>\n

Partners:<\/strong>
\nMadeleine Lowery, Insight Centre for Data Analytics, University College Dublin, Ireland
\nEsther Cubo, Hospital Universitario of Burgos, Spain
\nGrzegorz Witkowski, Institute of Psychiatry and Neurology, Warsaw, Poland
\nBernhard Landwehrmeyer, University of Ulm, Germany
\nHans Jung, University of Zurich, Switzerland<\/p>\n

FCDS Study<\/strong>
\nScaling up the Family Carer Decision Support Intervention: A transnational effectiveness-implementation evaluation<\/p>\n

Coordinator:<\/strong>
\nKevin Brazil, Queen\u2019s University Belfast,\u00a0United Kingdom<\/p>\n

Partners:<\/strong>
\nSharon Kaasalainen, McMaster University, Canada
\nJenny van der Steen, Leiden University Medical Centre, The Netherlands
\nNicola Cornally, University College Cork, Republic of Ireland
\nMartin Loucka, Center for Palliative Care, Czech Republic<\/p>\n

HEALTHE-RND<\/strong>
\nEuropean eHealth care model for rare neurodegenerative diseases<\/p>\n

Coordinator:<\/strong>
\nJiri Klempir, Charles University in Prague, Czech Republic
\n
\nPartners:<\/strong>
\nJennifer Hoblyn, Bloomfield Hospital, Trinity College Dublin, Ireland
\nFerdinando Squitieri, Huntington and Rare Diseases Unit, IRCCS Casa Sollievo della Sofferenza Hospital, Italy
\nWilco Achterberg, Leiden University Medical Center, Topaz Huntington Center Overduin, The Netherlands
\nNiels Chavannes, Leiden University Medical Center, Department of Public Health and Primary Care, The Netherlands
\nBernhard Landwehrmeyer, University of Ulm, Germany
\nStephen P McKenna, Galen Research, Manchester, United Kingdom<\/p>\n


\nHOMESIDE<\/strong>
\nA HOME-based Spousal caregiver-delivered music Intervention for people living with DEmentia: A Randomised Controlled Trial
\n
\nCoordinator:<\/strong>
\nFelicity Baker, The University of Melbourne, Australia<\/p>\n

Partners:<\/strong>
\nKarette Stens\u00e6th, Norwegian Academy of Music, Norway
\nHelen Odell-Miller, Anglia Ruskin University, United Kingdom
\nThomas Wosch, University of Applied Sciences W\u00fcrzburg-Schweinfurt, Germany
\nAnna Bukowska, University of Physical Education in Krakow, Poland<\/p>\n


\niCARE-PD<\/strong>
\nIntegrated Parkinson Care Networks: addressing complex care in Parkinson disease in contemporary society<\/p>\n

Coordinator:<\/strong>
\nTiago Mestre, The Ottawa Hospital Research Institute \/ University of Ottawa, Canada<\/p>\n

Partners:<\/strong>
\nCarsten Eggers, Philipps University of Marburg, Germany
\n\u00c1lvaro Sanchez-Ferro, Fundaci\u00f3n Investigaci\u00f3n HM Hospitales, Spain
\nOlivier Rascol, Toulouse University Hospital, France
\nTimothy Lynch, The Mater Misericordiae University Hospital, Ireland
\nEv\u017een R\u016f\u017ei\u010dka, Charles University, Czech Republic<\/p>\n


\nOPTIM-PARK<\/strong>
\nOptimization of community resources and systems of support to enhance the process of living with Parkinson\u2019s Disease: a multisectoral intervention<\/p>\n

Coordinator:<\/strong>
\nMaria Carmen Portillo, University of Southampton, United Kingdom
\n
\nPartners:<\/strong>
\nMaria Victoria Navarta, University of Navarra, Spain
\nLydia L\u00f3pez Manzanares, Hospital Universitario de la Princesa, Spain
\nChristina Foss, University of Oslo, Norway
\nAnita Haahr, VIA University College, Denmark<\/p>\n


\nSHAPE<\/strong>
\nS<\/strong>elf-management and\u00a0H<\/strong>eA<\/strong>lth\u00a0P<\/strong>romotion in\u00a0E<\/strong>arly-stage dementia with e-learning for carers \u2013 A randomised controlled trial<\/p>\n

Coordinator:<\/strong>
\nIngelin Testad, Stavanger University Hospital, Norway
\n
\nPartners:<\/strong>
\nGeir Selb\u00e6k, Norwegian National Advisory Unit on Ageing and Health, Norway
\nLinda Clare, University of Exeter, United Kingdom
\nMartin Knapp, London School of Economics & Political Science, United Kingdom
\nKaarin Anstey, University of New South Wales, Australia<\/p>\n


\nSHARED<\/strong>
\nS<\/strong>ocial\u00a0H<\/strong>ealth\u00a0A<\/strong>nd\u00a0R<\/strong>eserve<\/strong>\u00a0in the\u00a0D<\/strong>ementia patient journey<\/p>\n

Coordinator:<\/strong>
\nArfan Ikram, Erasmus MC Rotterdam, The Netherlands
\n
\nPartners:<\/strong>
\nRen\u00e9 Melis, Radboud UMC, The Netherlands
\nAnna-Karin Welmer, Karolinska Institutet, Sweden
\nHenry Brodaty, University of New South Wales, Australia
\nDaniel Davis, University College London, United Kingdom
\nKarin Wolf-Ostermann, University of Bremen, Germany
\nJoanna Rymaszewska, Wroclaw Medical University, Poland<\/p>\n","protected":false},"excerpt":{"rendered":"

The EU Joint Programme on Neurodegenerative Disease Research (JPND) has […]<\/p>\nView Post<\/a>","protected":false},"author":3,"featured_media":2796,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[1],"tags":[],"class_list":["post-20754","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-general-news-events"],"acf":[],"yoast_head":"\n2018 Call Results - Health and social care for neurodegenerative diseases - JPND Neurodegenerative Disease Research<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/neurodegenerationresearch.eu\/2018\/11\/2018-call-results-health-and-social-care-for-neurodegenerative-diseases\/\" \/>\n<meta property=\"og:locale\" content=\"sv_SE\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"2018 Call Results - 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