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SATSA
Swedish Adoption/Twin Study of Aging
ki.se/en/meb/satsa-the-swedish-adoptiontwin-study-of-aging
[email protected]
VR, FORTE, NIA, JPND
VR, FORTE, NIA, JPND
Data analysis ongoing
Sweden
Yes, for all the cohort
https://dornsife.usc.edu/labs/scrap/publications/
health and cognitive examinations, questionnaires
No
Age
Alzheimer’s disease and other dementias
Data is held as individual records
No
Data held on computer based records
No
Yes
Apply to PI or co-ordinator at resource| Access independent of collaboration with PI| Access committee mechanism| Local/ regional access| National access| International access| Applicant needs to provide separate external ethics approval
No policy exists
No
A longitudinal program in gerontological genetics (aging)
it is comprised of a sample of elderly twins who were separated at an early age and reared apart, giving unique opportunities to study early environmental effects
300
Nancy Pedersen, Karolinska Institutet, The Study of Dementia in Swedish Twins
1,000-5,000 participants
No
Longitudinal
and through links to medical records
Other
No
01/10/1984
01/06/2014
Data analysis ongoing
Only through the study
Data summarised in database
No
No
Database on paper
Swedish Adoption/Twin Study of Aging
Already possible
Population Cohorts
Sweden
Alzheimer’s disease & other dementias
2016
