The Aberdeen Children of the 1950s study

Title of the cohort
The Aberdeen Children of the 1950s study
Acronym for cohort
ACONF
Name of Principal Investigator

Title Professor
First name  Sally
Last name Macintyre

Address of institution where award is held

Institution MRC Social and Public Health Sciences Unit
Street Address 4 Lilybanks Gardens
City Glasgow
Postcode G12 8RZ

Country
United Kingdom
Website
http://www.abdn.ac.uk/aconf/
Contact email
[email protected]
Funding source
The MRC and the University of Aberdeen
1. The cohort includes, or expects to include, incidence of the following conditions

  • Neurodegenerative disease in general

When studies on the above condition(s) are expected to become possible
2016 – 2025
2a. Stated aim of the cohort
The Children of the 1950s study is a population-based resource for the study of biological and social influences on health across the life-course and between generations.
2b. Features distinguishing this cohort from other population cohorts
5 to 12
3a. i) Number of publications that involve use of cohort to date
0
3a. ii) Up to three examples of studies to date (PI, Institution, Title of Study)

3b. Publication list/link to where data or publications are accessible (if available)
http://www.abdn.ac.uk/aconf/frameset.html
3c. Information (i.e. research findings) expected to be gained from the population cohort

4a. Study criteria: age range of participants at recruitment

Age in years from: 5 to 12
To (‘until death’ if applicable): until death

4b. Study criteria: inclusion criteria
All children born 1950 to 1956 in Aberdeen, Scotland who took part in a survey in that city when in primary school in 1962
4c. Study criteria: exclusion criteria
None
5. Size of the cohort (i.e. number of participants enrolled)
10,001 – 15,000 participants
6a. Measures used to characterise participants
Participants are characterised by birth weight, childhood height and weight, tests of cognition and behavioural disorder, and a range of multi-level socio-economic indicators.
6b. Additional measures for participants with a clinical disorder
No
6c. Are there defined primary and secondary endpoints (e.g. defined health parameters)
No
7. Study design

  • Longitudinal

8. Cases matched by

  • Age

9a. Does the study include a specialised subset of control participants
No
9b. If yes, description of specialised subset of control participants

10a. i) Data collection start date
01-12-1962
10a. ii) Data collection end date

10a iii) Data collection for this study is

  • Data collection ongoing

10b. Plans to continue the cohort study beyond the current projected end date

11. Data collected

  • Through links to medical records
  • Through links to other records or registers (such as dental records, police records etc). Please specify
  • General Register’s Office deaths and events notifications

12. System in place to enable re-contact with patients for future studies
Yes (participants have given permission to be re-contacted via the PIs to ask if they would participate in further studies)
13a. Format and availability of data stored in a database

Language used:
English
13b. Format and availability of data held as individual records

Yes/No % available
Data summarised in database
Database is web-based
Database on spreadsheet
Database is on paper  yes  100
Other (specify)

Language used:
English
14a. Are data available to other groups
Yes
14b. Access policy/mechanisms for access if data are available to other groups

  • Access Committee mechanism
  • International access
  • Resource has own ethics approval so usually no need for separate external ethics approval

15. Data sharing policy specified as a condition of use
No policy exists
16a. Are tissues/samples/DNA available to other groups
No
16b. i) Description of available tissues/samples/DNA

16b. ii) Form available tissues/samples/DNA are supplied in

16b. iii) Is the access policy/mechanism for obtaining samples the same as that for obtaining data

17. Is information on biological characteristics available to other groups

  • No

The Aberdeen Children of the 1950s study

Population Cohorts
United Kingdom
Neurodegenerative disease in general

 

 

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