The String of Pearls Initiative; Alzheimer’s Disease: Biobank

Name of bioresource/bank
The String of Pearls Initiative; Alzheimer’s Disease: Biobank
Name of Principal Investigator

Title Prof. Dr.
First name Frans / Philip
Last name Verhey / Scheltens

Address of institution where award is held

Institution Alzheimer Centrum Limburg
Street Address Dr. Tanslaan 12
City Maastricht
Postcode 6229 ET

Country

  • Netherlands
  • Website
    www.parelsnoer.org
    Contact email (e.g. manager or coordinator)
    [email protected]
    Funding source
    This initiative is funded by the government.
    Q1 What conditions does your resource cover?

  • Alzheimer’s disease and other dementias
  • Neurodegenerative disease in general
  • Q2a What DNA collection does your resources hold?

  • 101-1000 donors
  • Q2b What cell lines does your resource hold?

  • None
  • Q2c What tissue (including post-mortem tissue) does your resource hold?

  • 101-1000 donors
  • Q3 Are human tissues/samples/DNA from

  • Living donors:blood
  • Living donors: DNA
  • Living donors: cerebro-spinal fluid
  • Q4 Are tissues/samples/DNA from

  • Patients
  • Q5 Can samples be linked to clinical (phenotypic) information and if so, is this information:

  • Routinely collected as medical records
  • In a specific study-associated dataset
  • Q6 In what form are samples supplied?

  • Primary Samples: Stabilised samples (frozen or fixed)
  • Secondary samples: plasma
  • Secondary samples: DNA
  • Q7 Are biomarkers/analytes/biological characteristics already measured and the information available for your samples?

  • No
  • Q8 What is the status of your tissue/sample/DNA collection?

  • Collection ongoing
  • Q9 What are the rules and procedures for access?

  • Access Committee mechanism
  • Local/ regional access
  • National access
  • International access
  • Access to industry
  • Access for pilot studies permitted
  • Access restricted to peer-reviewed work
  • Applicant needs to provide separate external ethics approval
  • The String of Pearls Initiative; Alzheimer’s Disease: Biobank

    Biobanks

    2011

     

     

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