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Title of project or programme
| Title of PI | Commissioning for long term conditions: hearing the voice of and engaging users |
Principal Investigators of project/programme grant
| Title | Forname | Surname | Institution | Country |
| Dr | Stephen | Packham | London School of Hygiene & Tropical Medicine | United Kingdom |
| Professor | Sally | Kendall | University of Hertfordshire | United Kingdom |
| Dr | Fiona | Brooks | University of Hertfordshire | United Kingdom |
| Dr | Patricia | Wilson | University of Hertfordshire | United Kingdom |
Address of institution of lead PI
| Institution | London School of Hygiene & Tropical Medicine |
| Street Address | Keppel Street |
| City | London |
| Postcode | WC1E 7HT |
Country
- United Kingdom
Source of funding information
Department of Health (DH)
Total sum awarded (Euro)
627906
Start date of award
01-11-2009
Total duration of award in months
36
The project/programme is most relevant to
- Neurodegenerative disease in general
Keywords
Parkinson Disease, Dementia, Motor Neuron Disease, Neurodegenerative Diseases
Research abstract in English
Lay summary
The government is encouraging the development of choice for people with long term conditions. The aim of this project to identify the most appropriate ways for commissioners to support and engage with people with long term conditions to develop the most responsive service menu in their locality.
The research will gather information on different approaches used by NHS organisations who fund health care services and how patient groups engage with health and social care agencies to influence patterns of services. In addition to reviewing practice across the UK we will focus on three geographical areas and examine practices of commissioning and purchasing health care for people with long term conditions, approaches to patient and public involvement, patterns of services for people with long term conditions and the activities of local patient and voluntary organisations for people with long term conditions.
It will focus on three groups of patients/conditions – rheumatoid arthritis, diabetes and neurological conditions. We will work closely with local NHS staff and patient organisations to explore the key problems in developing a range of services that patients are able to make choices about. We will track processes and developments over a period of two years to identify what impact patient involvement has on service design and patients. We will then develop guidance for funders that highlights the most effective approaches to supporting, enabling or regulating involvement across health and social care funders and providers to ensure the best outcomes.
In which category does this research fall?
- Health and social care research
Commissioning for long term conditions: hearing the voice of and engaging users
Investments > €500k
United Kingdom
Neurodegenerative disease in general
2011