Needs in Young onset Dementia (Need-YD)

Title of project or programme

Title of PI

Needs in Young onset Dementia (Need-YD)

Principal Investigators of project/programme grant

Title	Forname	Surname	Institution	Country
dr.	Marjolein	de Vugt	Alzheimer Centrum Limburg	Netherlands
Netherlands	prof. dr.	Raymond	Koopmans	Alzheimer Centrum Nijmegen
prof. dr	Frans	Verhey	Alzheimer Centrum Limburg	Netherlands
prof. dr.	Myrra	Vernooy-Dassen	Alzheimer Centrum Nijmegen	Netherlands
dr.	Yolanda	Pijnenburg	Alzheimercentrum VUmc	Netherlands

Address of institution of lead PI

Institution	Maastricht University / Alzheimer Center Limburg
Street Address	dr. Tanslaan
City	01-10-2007
Postcode

Country

• Netherlands

Source of funding information
Dutch Alzheimer’s Association (Azheimer Nederland)
Total sum awarded (Euro)
450000
Start date of award
Early onset dementia has serious consequences for patients and their family members. Although there has been growing attention for this patient group, health care services are still mainly targeted at the elderly. Specific knowledge of the needs of early onset dementia patients and their families is limited but necessary for the development of adequate health care services and specific guidelines. This research project is mainly targeted at delineating the course of early onset dementia, the functional characteristics and needs of early onset dementia patients and their caregivers, the risk factors for institutionalization and the interaction with the caring environment.
The NeedYD-study (Needs in Young Onset Dementia) is a longitudinal observational study investigating early onset dementia patients and their caregivers (n = 217). Assessments are performed every six months over two years and consist of interviews and questionnaires with patients and caregivers. The main outcomes are (1) the needs of patients and caregivers, as measured by the Camberwell Assessment of Needs for the Elderly (CANE) and (2) neuropsychiatric symptoms, as measured by the NeuroPsychiatric Inventory (NPI). Qualitative analyses will be performed in order to obtain more in-depth information on the experiences of EOD patients and their family members. The results of this study will be compared with comparable data on late onset dementia from a historical cohort.
Total duration of award in months
48
The project/programme is most relevant to

• Alzheimer’s disease and other dementias

Keywords
Young onset dementia
Needs
Behavioural problems
Research abstract in English
3
Lay Summary

In which category does this research fall?

• Health and social care research

Needs in Young onset Dementia (Need-YD)

Investments > €500k
Netherlands
Alzheimer’s disease & other dementias
2011