This website is now the new JPND's archival platform. This website hosts all of JPND's archived content and resources.
Please continue to visit this site to access publications, videos and reports from JPND's activities.
NIHR Bioresource (South London and Maudsley NHS Foundation Trust) Capital Infrastructure United Kingdom 2016
NIHR Bioresource (Guy’s and St Thomas’ NHS Foundation Trust) Capital Infrastructure United Kingdom 2016
NIHR Bioresource (Imperial College Healthcare NHS Trust ) Capital Infrastructure United Kingdom 2016
NIHR Bioresource (Cambridge University Hospitals NHS Foundation Trust) Capital Infrastructure United Kingdom 2016
Northern Ireland Clinical Research Network (Dementia) Capital Infrastructure United Kingdom 2016
KORA Cooperative Health Research in the Augsburg Region [email protected] Data collection ongoing Germany please check the KORA website. We have an extensive phenotypic characterization (examinations, interview, questionnaires) including hundreds of variables. In addition, we have blood samples and other…
EUROSCA-NHS European Spinocerebellar Ataxia Natural History Study [email protected] Closed to new patients Germany Yes, for all the cohort Yes – intend to apply for funding Spinocerebellar ataxia (SCA) No No requirement to make data publicly available 0 1,000-5,000 participants…
RISCA Prospective study of individuals at risk for spinocerebellar ataxia type 1, type 2, type 3 and type 6 [email protected] Data collection ongoing| Closed to new patients Germany Yes, for all the cohort Clinical scale, timed tests, MRI, electrophysiology…
GNC German National Cohort [email protected] Combined national and regional funding Combined national and regional funding At the planning stage Germany Primary Samples: Stabilised samples (frozen or fixed)| Secondary samples: plasma| Secondary samples: DNA| Secondary samples: RNA| Secondary samples: protein…
Factors for disease progression in Alzheimer´s disease www.alzheimer.med.uni-goettingen.de [email protected] Germany Biomarkers, neuropsychological tests, genetic analyses, MRI, brain lesion profiles Progression rate Alzheimer’s disease and other dementias To determine the rate of progression into AD 0 1,000-5,000 participants Prospective cohort Factors…
