Category survey

Name of regional policy Curatief gezondheidsbeleid Name of region Flanders Please briefly describe the policy first line health care, mental health care provisions, hospitals Is this policy about: Both health and social care Does this policy cover: Both Please categorise…

Name of policy Belgische Sociale Zekerheid Please briefly describe the policy Covers social security and social aid. The social security systems has 3 systems: for employees, civil servants and independents. The Social security system covers unemployment aid, pension regulation, health…

Title of project or programme Title of PI Shared Decision Making (SDM) in care networks of older adults with dementia/ RAAKPRO Principal Investigators of project/programme grant Title Forname Surname Institution Country Dr Myrra Vernooij-Dassen AlzheimerCenter Nijmegen / UMC St Radboud…

Name of resource (including any acronym) Ressource Parisienne en Bioinformatique Structurale (RPBS) Name of Principal Investigator Title Dr First name Pierre Last name Tuffery Address of institution where award is held Institution INSERM UMR-S 973 Street Address 35 rue H.…

Name of resource (including any acronym) BIN – Brain Imaging Network – Portugal Name of Principal Investigator Title MD PhD First name Miguel Last name Castelo-Branco Address of institution where award is held Institution IBILI – University of Coimbra Street…

Title of the register Behavioral Neurology and Movement Disorders Unit Name of Principal Investigator Title Prof Dr First name Hakan Last name Gurvit Address of institution where award is held Institution Istanbul Faculty of Medicine Street Address Millet caddesi City…

Name of bioresource/bank Movement Disorders and Behavioral Neurology DNA Bank Name of Principal Investigator Title Dr First name Ebba Last name Lohmann Address of institution where award is held Institution Istanbul Faculty of Medicine, DETAE Street Address Millet caddesi City…

Title of project or programme Title of PI Group III metabotropic glutamate receptors (mGluRs): from new molecules to therapeutic development for the treatment of Parkinson’s disease Principal Investigators of project/programme grant Title Forname Surname Institution Country Research Director Marianne AMALRIC…

Title of project or programme Title of PI Mitochondrial dysfunction and selective dopaminergic neurodegeneration in Parkinson’s disease: What relationships? Principal Investigators of project/programme grant Title Forname Surname Institution Country Research Fellow Olga Corti Inserm France Research Director Philippe Vernier CNRS…

Title of the cohort Cohort – H70 Acronym for cohort H70 Name of Principal Investigator Title Professor First name Ingmar Last name Skoog Address of institution where award is held Institution Neuroscience and Physiology, Neuropsychiatric Epidemiology, Gothenburg University Street Address…

Title of the cohort Cohort – H85 Acronym for cohort H85 Name of Principal Investigator Title Professor First name Ingmar Last name Skoog Address of institution where award is held Institution Neuroscience and Physiology, Neuropsychiatric Epidemiology Street Address Wallinsgatan 6…

Title of the cohort Cohort – 95+ Acronym for cohort 95+ Name of Principal Investigator Title Professor First name Ingmar Last name Skoog Address of institution where award is held Institution Neuroscience and Physiology, Neuropsychiatric epidemiology, Gothenburg University Street Address…

Briefly, is there anything else about your national or regional policies that you would like to explain or tell us about that is already captured? For example, if both exist, does the regional policy add to or complement the national…

Title of project or programme Title of PI Survey on housing for people with dementia (sequel) Principal Investigators of project/programme grant Title Forname Surname Institution Country survey leader Anne Margriet Pot Trimbos NL senior researcher Jacomine de Lange Trimbos NL…

Title of project or programme Title of PI Complexity of Amyloid Formation: Bridging the Gap between Experimental Data and Theoretical Models Principal Investigators of project/programme grant Title Forname Surname Institution Country Dr. Mogens University of Copenhagen Denmark Address of institution…

Title of project or programme Title of PI “Control of Actions” (ContAct) Principal Investigators of project/programme grant Title Forname Surname Institution Country Dr.med Hartwig Roman Siebner Danish Research Centre for Magnetic Resonance Denmark Address of institution of lead PI Institution…

Name of bioresource/bank CGPP Biobank Name of Principal Investigator Title MD, PhD First name Jorge Last name Sequeiros Address of institution where award is held Institution CGPP and UnIGENe – IBMC Street Address Rua do Campo Alegre, 823 City Porto…

Title of project or programme Title of PI Heterogeneity in trajectories of the natural course of dementia in incident dementia cases: the influence of co-morbidity Principal Investigators of project/programme grant Title Forname Surname Institution Country prof.dr. Marcel Olde Rikkert Alzheimer…

Title of project or programme Title of PI Two phase, repeated crossover study with dose escalation on Delta(9)-tetrahydrocannabinol in behavioural disturbances in dementia (Delta-THC) Principal Investigators of project/programme grant Title Forname Surname Institution Country prof. dr. Marcel Olde Rikkert Alzheimer…

Title of project or programme Title of PI Pathophysiology and intra-individual variability of CSF biomarkers in controls and in Alzheimer’s disease Principal Investigators of project/programme grant Title Forname Surname Institution Country prof. dr. Marcel Olde Rikkert Alzheimer Centrum Nijmegen Netherlands…

Title of project or programme Title of PI Implementation of quality indicators in palliative care study (IMPACT) Principal Investigators of project/programme grant Title Forname Surname Institution Country prof. dr. Myrra Vernooij-Dassen Alzheimer Centrum Nijmegen Netherlands prof. dr. Kris Vissers Radboud…

Title of project or programme Title of PI The interactions of blood pressure, brain perfusion and cognition in hypertension and Alzheimer’s disease Principal Investigators of project/programme grant Title Forname Surname Institution Country Dr. Jurgen Claassen Alzheimer Centrum Nijmegen Netherlands Dr.…

Title of the register CGPP Database Name of Principal Investigator Title MD, PhD First name Jorge Last name Sequeiros Address of institution where award is held Institution CGPP and UnIGENe Street Address Rua do Campo Alegre, 823 City Porto Postcode…

Name of RN Title of PI Turkuaz Alzheimer Working Group Mission of RN To register and follow dementia cases by a web-based dementia registry in dementia clinics across Turkey Director Title MD, PhD First name Last name Yener Address of…

Title of the register Turkuaz Alzheimer’s Working Group Register Name of Principal Investigator Title MD, PhD First name Last name Yener Address of institution where award is held Institution Street Address Mithatpasa Cad. City Izmir Postcode 35340 Country Turkey Website…

Title of project or programme Title of PI The course of Mild Cognitive Impairment and predictors of outcome with a focus on apathy Principal Investigators of project/programme grant Title Forname Surname Institution Country Prof. Dr. Frans Verhey Alzheimer Centrum Limburg…

Title of the cohort Cohort – Seniors Quid Acronym for cohort PAQUID Name of Principal Investigator Title Professor First name Last name DARTIGUES Address of institution where award is held Institution Street Address City Bordeaux Postcode 33076 Country France Website…

Title of project or programme Title of PI Nursing home Evironment Study in relation to Behavioural problems in Dementia (NESBED) Principal Investigators of project/programme grant Title Forname Surname Institution Country dr. Marjolein de Vugt Alzheimer Centrum Limburg Netherlands prof.dr. Frans…

Name of policy Social support act (Wmo) Please briefly describe the policy Under the Act, the municipalities are now responsible for setting up social support. The introduction of the Wmo offers an opportunity to improve the service provision to citizens…

Name of policy Policy for older persons in the perspective of an aging population Please briefly describe the policy Is this policy about: Both health and social care Does this policy cover: Both Please categorise the policy using the following…

Name of policy Patients’ Rights (Care Sector) Act Please briefly describe the policy Is this policy about: Health care Does this policy cover: The care of people having a neurodegenerative condition (the patient) Please categorise the policy using the following…

Name of policy Health Insurance Act Please briefly describe the policy The system is a private health insurance with social conditions. The system is operated by private health insurance companies; the insurers are obliged to accept every resident in their…

Name of policy Exceptional Medical Health Insurance Act Please briefly describe the policy The Exceptional Medical Expenses Act (EMEA or AWBZ) is a national insurance scheme for long-term care. This scheme is intended to provide the insured with chronic and…

Name of policy Palliative care Please briefly describe the policy In the Netherlands, palliative care is part of regular health care. The approach of the Dutch government is that palliative care should be provided as much as possible by generalists…

Name of policy Euthanasia Act Please briefly describe the policy In the Netherlands, euthanasia is understood to mean termination of life by a medical practitioner at the request of a patient. This definition also covers assisted suicide. Is this policy…

Name of policy Care for the elderly; Concerning the quality of life Please briefly describe the policy Is this policy about: Both health and social care Does this policy cover: Both Please categorise the policy using the following descriptors Relevant…

Name of policy The future of the AWBZ; a detailed explanation Please briefly describe the policy A vision on long-term care and social support, now and in the future. More specifically it describes the policy towards sub-issues as personal budgets,…

Name of policy Individual Health Care Professionals Act (Wet BIG) Please briefly describe the policy This Act concerns with the quality of care and protection provided to patients, and provides a register of health care professionals (the BIG-register). The BIG-register…

Title of project or programme Title of PI Vascular factors Principal Investigators of project/programme grant Title Forname Surname Institution Country Prof.Dr. Philip Scheltens Alzheimercentrum VUmc Netherlands Prof.Dr. Frederik Barkhof VUmc / Radiology Netherlands Dr. Wiesje van der Flier Alzheimercentrum VUmc…

Name of policy Act on administrators, guardians and curators Please briefly describe the policy The act will specify which quality standards must be met by administrators, curators and guardians in order to qualify for appointment. Is this policy about: Social…

Title of project or programme Title of PI Endophenotypes Principal Investigators of project/programme grant Title Forname Surname Institution Country Prof.Dr. Philip Scheltens Alzheimercentrum VUmc Netherlands Dr Wiesje van der Flier Alzheimercentrum VUmc Netherlands Dr Yolande Pijnenburg Alzheimercentrum VUmc Netherlands Prof.Dr.…

Name of policy Act on Equal Treatment of Disabled and Chronically Ill People (WGBH/CZ) Please briefly describe the policy This important legislative tool will enable disabled and chronically ill people to legally enforce their equal rights. Is this policy about:…

Title of project or programme Title of PI Early diagnosis Principal Investigators of project/programme grant Title Forname Surname Institution Country prof.dr. Philip Scheltens Alzheimercentrum VUmc Netherlands prof.dr. Bart van Berckel VUmc / Nuclear Medicine Netherlands dr. Wiesje van der Flier…

Name of policy Psychiatric Hospitals (Compulsory Admissions) Act Please briefly describe the policy Among other things, the Psychiatric Hospitals (Compulsory Admissions) Act lays down rules for the procedure for compulsory admission, discharging patients and the granting of leave, the use…

Title of project or programme Title of PI Interventions Principal Investigators of project/programme grant Title Forname Surname Institution Country prof.dr. Philip Scheltens Alzheimercentrum VUmc Netherlands dr. Pieter Jelle Visser Alzheimer Centrum Limburg Netherlands prof. Hilka Soininen University of Kupoio Finland…

Name of regional policy Regional dementia support network Name of region Noord-Brabant (province) Please briefly describe the policy Support (also financial), advice and counselling for organisation aiming to improve and increase the support for people with dementia, their carers, volunteers…

Name of resource (including any acronym) Bioinformatics Platform GenOuest Name of Principal Investigator Title Olivier First name COLLIN Address of institution where award is held Institution Street Address Campus de Beaulieu City Rennes Postcode 35042 Country France Website link with…

Title of project or programme Title of PI Connected Care for Elderly persons suffering from dementia Principal Investigators of project/programme grant Title Forname Surname Institution Country Kees Tuinenbreijer Philips Consumer Lifestyle B.V., High Impact Innovation Center Netherlands Address of institution…

Title of project or programme Title of PI ROSETTA; Guidance and Awareness Services for Indepent Living Principal Investigators of project/programme grant Title Forname Surname Institution Country Dr Irek Karkowski Nederlandse Organisatie voor Toegepast Natuurwetenschappelijk Onderzoek (TNO) Netherlands Address of institution…

Title of project or programme Title of PI Implementation and evaluation of an occupational therapy intervention at home for dementia patients and their primary caregivers Principal Investigators of project/programme grant Title Forname Surname Institution Country Dr Maud Graff UMC St.…