Title of the cohort
Cohort – Health 2000
Acronym for cohort
H2000
Name of Principal Investigator
| Title | Research professor |
| First name | Arpo |
| Last name | Aromaa |
Address of institution where award is held
| Institution | The National Institute for Health and Welfare |
| Street Address | Mannerheimintie 166 |
| City | Helsinki |
| Postcode | 00330 |
Country
- Finland
Website
www.terveys2000.fi
Contact email
Funding source
1. The cohort includes, or expects to include, incidence of the following conditions
- Alzheimer’s disease and other dementias
- Parkinson’s disease
When studies on the above condition(s) are expected to become possible
- Already possible
2a. Stated aim of the cohort
The main aim of Health 2000 is to provide an up-to-date comprehensive picture of health and functional ability in the working-aged and aged population by studying the prevalence and determinants of most important health problems and associated need for care, rehabilitation and help.
2b. Features distinguishing this cohort from other population cohorts
3a. i) Number of publications that involve use of cohort to date
305
3a. ii) Up to three examples of studies to date (PI, Institution, Title of Study)
3b. Publication list/link to where data or publications are accessible (if available)
http://www.terveys2000.fi/julkaisut.html#2000
3c. Information (i.e. research findings) expected to be gained from the population cohort
4a. Study criteria: age range of participants at recruitment
| Age in years from: | 18 |
| To (‘until death’ if applicable): | until death |
4b. Study criteria: inclusion criteria
A nationally representative sample of 10,000 persons has been drawn of the population aged 18 and over. Targets of the study are general health, major chronic conditions, functional ability and limitations, determinants of health, diseases, functional ability and limitations, health needs and service needs and their satisfaction.
4c. Study criteria: exclusion criteria
none
5. Size of the cohort (i.e. number of participants enrolled)
- 5,001 – 10,000 participants
6a. Measures used to characterise participants
?
6b. Additional measures for participants with a clinical disorder
6c. Are there defined primary and secondary endpoints (e.g. defined health parameters)
- No
7. Study design
- Cross sectional survey
8. Cases matched by
- Other health assessment (specify) / N/A
- no matching
9a. Does the study include a specialised subset of control participants
- No
9b. If yes, description of specialised subset of control participants
10a. i) Data collection start date
31-01-2000
10a. ii) Data collection end date
01-09-2001
10a iii) Data collection for this study is
- Data analysis ongoing
10b. Plans to continue the cohort study beyond the current projected end date
11. Data collected
- Through links to other records or registers (such as dental records, police records etc). Please specify
- morbidity register
12. System in place to enable re-contact with patients for future studies
- Yes (participants have given permission to be re-contacted via the PIs to ask if they would participate in further studies)
13a. Format and availability of data stored in a database
Language used:
13b. Format and availability of data held as individual records
Language used:
14a. Are data available to other groups
Yes
14b. Access policy/mechanisms for access if data are available to other groups
- Apply to PI or co-ordinator at resource
- Access Committee mechanism
- Resource has own ethics approval so usually no need for separate external ethics approval
15. Data sharing policy specified as a condition of use
- No requirement to make data publicly available
16a. Are tissues/samples/DNA available to other groups
Yes
16b. i) Description of available tissues/samples/DNA
- Living donors: DNA
16b. ii) Form available tissues/samples/DNA are supplied in
- Secondary samples: DNA
16b. iii) Is the access policy/mechanism for obtaining samples the same as that for obtaining data
Yes
17. Is information on biological characteristics available to other groups
- No