Name of Resource (to include any acronym)


Name of Resource


Irish ALS Research Group

Name of Principal Investigator - Title


Prof

Name of Principal Investigator - First Name


Orla

Name of Principal Investigator - Last Name


Hardiman

Address of institution -Institution


Trinity College London

Address of institution - Street address


College Green

Address of institution - City


Dublin

Address of institution - Postcode


2

Country


Ireland

Website


Contact email


[email protected]

Purpose of resource


Complex genetics of ALS and FTD

Q1. Is the resource?


General (e.g. DNA sequence, proteomic data)|Designed for use in clinical neurosciences research

Please Specify


Q2. Does the resource specifically provide for any of the neurodegenerative diseases/disease subtypes specified below?


Motor neurone disease

Q3a. Is the resource accessible to the research community?


No

Q3b. If yes, what procedures and rules apply for access?


Apply to PI or coordinator at resource

Q4a. What type of data is provided?


GWAS & WGS|Deep Phenotype|Spectral EEG|3T imaging|Detailed neuropsychologial assessments

Please describe


Q4b. More generally are there other data available through the resource that you think may be useful to researchers in the context of the above conditions?


Cognitive Function|Motor Function|Pharmacological Function

Please describe


Q5a. Is maintenance of this resource dependent on continued funding?


Yes

Q5b. If yes, when does the current funding period end?


01/01/2020

Q5c. Are there plans to secure further funding beyond this period?


Yes

If YES please specify for how long in years


10

Q5d. What is the expected lifespan of the resource (in years)?


Indefinite

Q5e. Are there other plans affecting future use that it may be useful to know?


We are part of a number of large Consortia

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