Dr. J. de Lange
Maintaining self-sufficiency, functional independence and social inclusion of community dwelling people with dementia and their informal caregivers
Alzheimer's disease & other dementias
BACKGROUND: Dementia care changes drastically due to the growing number of people with dementia. Less young people are able to take care of the elderly (WHO, 2012). In addition, there is a trend in the Netherlands to give greater responsibility for care to informal caregivers and other citizens. As people with dementia live longer at home it is important that they, and their caregivers, stay as vital as possible. Being vital means that people with dementia can function independently, are able to keep social contacts, and can participate in their neighbourhood and society. Usual dementia care is not aimed at these themes.
THE AIM is the development and implementation of the integral approach, to identify factors influencing the feasibility of this approach, to assess the feasibility of outcome measurement and to get an impression of the possible perceived outcomes. The integral approach is need-driven and tailor-made and targets at enhancement of functional independence and social inclusion of people with dementia and their informal caregivers. Starting point is the wishes and needs of people with dementia and their informal caregivers. Based on these personal needs tailor-made interventions are conducted.
RESEARCH QUESTION: What determinants affect the development and implementation of an integral, multi-component, need-driven, tailor-made approach aiming at maintaining self-sufficiency, functional independence and social inclusion of people with dementia and their informal caregivers?
STUDY DESIGN: a multiple case study design.