Title of the cohortPanel Survey of Ageing and the Elderly (PSAE) 2010
Name of Principal Investigator| Title | Prof |
| First name | |
| Last name | |
Address of institution where award is held| Institution | |
| Street Address | Box 720 |
| City | |
| Postcode | SE40530 |
Websitehttp://www.sociology.gu.se/english/?languageId=100001&contentId=-1&disableRedirect=true&returnUrl=http%3A%2F%2Fwww.sociology.gu.se%2F
1. The cohort includes, or expects to include, incidence of the following conditions- Neurodegenerative disease in general
When studies on the above condition(s) are expected to become possible
2a. Stated aim of the cohortProviding an overall broad picture of living conditions, general health, and economic conditions among older Swedes.
2b. Features distinguishing this cohort from other population cohortsIt is not cohort study. It is a population based sample of the Swedish population 55 year of age or older. It is unique because of its breadth, because it facilitate comparisons with younger age group (the database includes a representative sample of the whole adult population), and because of it longitudinal design that makes it possible to trace part of the sample all the way back to 1979.
3a. i) Number of publications that involve use of cohort to date0
3a. ii) Up to three examples of studies to date (PI, Institution, Title of Study)
3b. Publication list/link to where data or publications are accessible (if available)
3c. Information (i.e. research findings) expected to be gained from the population cohort
4a. Study criteria: age range of participants at recruitment| Age in years from: | They were aged 55-99 in 2002/2003. Part of the sample were interviewed in 1979, 1986/87 and 1996/69. We are currently, in 2011 and 2012, collecting new data. We are following the respondents to death and we are also continuously renew our sample in order to maintain a representative sample of the Swedish population. |
| To (‘until death’ if applicable): | |
4b. Study criteria: inclusion criteria
4c. Study criteria: exclusion criteria
5. Size of the cohort (i.e. number of participants enrolled)- 5,001 – 10,000 participants
6a. Measures used to characterise participantsNo characteristics are used, it is a representative sample.
6b. Additional measures for participants with a clinical disorder
6c. Are there defined primary and secondary endpoints (e.g. defined health parameters)
8. Cases matched by- Other health assessment (specify) / N/A
- No matching
9a. Does the study include a specialised subset of control participants
9b. If yes, description of specialised subset of control participants
10a. i) Data collection start date
10a. ii) Data collection end date
10a iii) Data collection for this study is- Data collection ongoing
- Data analysis ongoing
10b. Plans to continue the cohort study beyond the current projected end date- Yes – intend to apply for funding
12. System in place to enable re-contact with patients for future studies- Yes (participants have given permission to be re-contacted via the PIs to ask if they would participate in further studies)
13a. Format and availability of data stored in a database
13b. Format and availability of data held as individual records
14a. Are data available to other groups
14b. Access policy/mechanisms for access if data are available to other groups- Access independent of collaboration with PI
- National access
15. Data sharing policy specified as a condition of use- Data to be made publicly available immediately
16a. Are tissues/samples/DNA available to other groups
16b. i) Description of available tissues/samples/DNA
16b. ii) Form available tissues/samples/DNA are supplied in
16b. iii) Is the access policy/mechanism for obtaining samples the same as that for obtaining data
17. Is information on biological characteristics available to other groups Types: Population Cohorts
Member States: Sweden
Diseases: Neurodegenerative disease in general
Years: 2011
Database Categories: N/A
Database Tags: N/A
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