Title of the cohortThe Aberdeen Children of the 1950s study
Name of Principal Investigator| Title | Professor |
| First name | Sally |
| Last name | Macintyre |
Address of institution where award is held| Institution | MRC Social and Public Health Sciences Unit |
| Street Address | 4 Lilybanks Gardens |
| City | Glasgow |
| Postcode | G12 8RZ |
Websitehttp://www.abdn.ac.uk/aconf/
Funding sourceThe MRC and the University of Aberdeen
1. The cohort includes, or expects to include, incidence of the following conditions- Neurodegenerative disease in general
When studies on the above condition(s) are expected to become possible
2a. Stated aim of the cohortThe Children of the 1950s study is a population-based resource for the study of biological and social influences on health across the life-course and between generations.
2b. Features distinguishing this cohort from other population cohorts
3a. i) Number of publications that involve use of cohort to date0
3a. ii) Up to three examples of studies to date (PI, Institution, Title of Study)
3b. Publication list/link to where data or publications are accessible (if available)http://www.abdn.ac.uk/aconf/frameset.html
3c. Information (i.e. research findings) expected to be gained from the population cohort
4a. Study criteria: age range of participants at recruitment| Age in years from: | 5 to 12 |
| To (‘until death’ if applicable): | until death |
4b. Study criteria: inclusion criteriaAll children born 1950 to 1956 in Aberdeen, Scotland who took part in a survey in that city when in primary school in 1962
4c. Study criteria: exclusion criteria
5. Size of the cohort (i.e. number of participants enrolled)10,001 – 15,000 participants
6a. Measures used to characterise participantsParticipants are characterised by birth weight, childhood height and weight, tests of cognition and behavioural disorder, and a range of multi-level socio-economic indicators.
6b. Additional measures for participants with a clinical disorder
6c. Are there defined primary and secondary endpoints (e.g. defined health parameters)
9a. Does the study include a specialised subset of control participants
9b. If yes, description of specialised subset of control participants
10a. i) Data collection start date
10a. ii) Data collection end date
10a iii) Data collection for this study is
10b. Plans to continue the cohort study beyond the current projected end date
11. Data collected- Through links to medical records
- Through links to other records or registers (such as dental records, police records etc). Please specify
- General Register’s Office deaths and events notifications
12. System in place to enable re-contact with patients for future studiesYes (participants have given permission to be re-contacted via the PIs to ask if they would participate in further studies)
13a. Format and availability of data stored in a database
13b. Format and availability of data held as individual records | Yes/No | % available |
| Data summarised in database | | |
| Database is web-based | | |
| Database on spreadsheet | | |
| Database is on paper | yes | 100 |
| Other (specify) | | |
14a. Are data available to other groups
14b. Access policy/mechanisms for access if data are available to other groups- Access Committee mechanism
- International access
- Resource has own ethics approval so usually no need for separate external ethics approval
15. Data sharing policy specified as a condition of use
16a. Are tissues/samples/DNA available to other groups
16b. i) Description of available tissues/samples/DNA
16b. ii) Form available tissues/samples/DNA are supplied in
16b. iii) Is the access policy/mechanism for obtaining samples the same as that for obtaining data
17. Is information on biological characteristics available to other groups Types: Population Cohorts
Member States: United Kingdom
Diseases: Neurodegenerative disease in general
Years: N/A
Database Categories: N/A
Database Tags: N/A
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