Title of the cohort
The Nord-Trondelag Health Study
Acronym for cohort
HUNT
Name of Principal Investigator
| Title | Professor |
| First name | Kristian |
| Last name | Hveem |
Address of institution where award is held
| Institution | HUNT Research Centre |
| Street Address | Forskningsveien 2 |
| City | Levanger |
| Postcode | NO-7600 |
Country
- Norway
Website
http://www.ntnu.edu/hunt/inenglish
Contact email
Funding source
The Research Council og Norway and others.
1. The cohort includes, or expects to include, incidence of the following conditions
- Neurodegenerative disease in general
When studies on the above condition(s) are expected to become possible
- Already possible
2a. Stated aim of the cohort
The fundamental strategy is to earn and maintain the confidence of the population we work in and with as is necessary for any successful population study.
2b. Features distinguishing this cohort from other population cohorts
3a. i) Number of publications that involve use of cohort to date
Yes. http://www.ntnu.edu/hunt
3a. ii) Up to three examples of studies to date (PI, Institution, Title of Study)
http://www.ntnu.no/hunt/sok
3b. Publication list/link to where data or publications are accessible (if available)
http://www.ntnu.no/hunt/sok
3c. Information (i.e. research findings) expected to be gained from the population cohort
4a. Study criteria: age range of participants at recruitment
| Age in years from: | 13 |
| To (‘until death’ if applicable): | 100 |
4b. Study criteria: inclusion criteria
Population based.
4c. Study criteria: exclusion criteria
Polulation based.
5. Size of the cohort (i.e. number of participants enrolled)
- More than 15,000
6a. Measures used to characterise participants
http://www.ntnu.edu/hunt/inenglish
6b. Additional measures for participants with a clinical disorder
6c. Are there defined primary and secondary endpoints (e.g. defined health parameters)
http://www.ntnu.edu/hunt/inenglish
7. Study design
- Cross sectional survey
8. Cases matched by
- Age
- Sex
- Co-morbidities
- Cognitive function
- Physical ability
- Other health assessment (specify) / N/A
- From question
9a. Does the study include a specialised subset of control participants
- Yes
9b. If yes, description of specialised subset of control participants
opulation based
10a. i) Data collection start date
01-03-2011
10a. ii) Data collection end date
01-03-2011
10a iii) Data collection for this study is
- Data collection ongoing
- Data analysis ongoing
10b. Plans to continue the cohort study beyond the current projected end date
11. Data collected
- Through links to medical records
- Through links to other records or registers (such as dental records, police records etc). Please specify
- http://www.ntnu.edu/hunt
12. System in place to enable re-contact with patients for future studies
- Yes (participants have given permission to be re-contacted via the PIs to ask if they would participate in further studies)
13a. Format and availability of data stored in a database
Language used:
13b. Format and availability of data held as individual records
Language used:
14a. Are data available to other groups
Yes
14b. Access policy/mechanisms for access if data are available to other groups
- National access
- International access
- Access independent of collaboration with PI
- Access Committee mechanism
- Applicant needs to provide separate external ethics approval
15. Data sharing policy specified as a condition of use
- No requirement to make data publicly available
16a. Are tissues/samples/DNA available to other groups
Yes
16b. i) Description of available tissues/samples/DNA
- Living donors:blood
- Living donors: DNA
16b. ii) Form available tissues/samples/DNA are supplied in
- Primary samples: Supplied fresh
- Secondary samples: DNA
16b. iii) Is the access policy/mechanism for obtaining samples the same as that for obtaining data
Yes
17. Is information on biological characteristics available to other groups
- Yes, for all the cohort