Principal Investigators

    Professor Gerard Fealy


    University College Dublin

    Contact information of lead PI



    Title of project or programme

    Towards resilience in family caregiving for people with dementia

    Source of funding information

    Health Research Board / The Atlantic Philanthropies

    Total sum awarded (Euro)

    € 319,613

    Start date of award


    Total duration of award in years


    The project/programme is most relevant to:

    Alzheimer's disease & other dementias


    Research Abstract

    The Irish National Dementia Strategy (2014) recognises that dementia can adversely affect carers’ health, social and economic circumstances and relationships, and stresses the importance of ‘a whole community approach’ in which social connectedness and social environments are the means of ensuring that remaining at home with dementia is a feasible option. These outcomes can be achieved if the carer is more resilient, that is, has the resources to counterbalance the negative effects of adversity and make positive adaptation to the demands of caregiving. Resilience is a function of the individual’s internal resources, such as self-efficacy, and the ability to use external resources, such as services and family and other social support systems as a way of coping with stressors of caregiving. The aim of the study is to develop and promote resilience in family carers of people with dementia. The study will be conducted within a participatory action research framework and will be developed in three stages. Stage 1 will involve a systematic review of literature on resilience and resilience-enhancing interventions and initiatives in family caregiving. It will also involve a national survey of family carers aimed at measuring resilience and related psychosocial factors and data-mining of an existing dataset of family carers to measure key variables associated with psychosocial effects of caregiving in dementia. Stage 2 will involve the development of an Enhancing Carers’ Resilience (EnCaRe) programme for family caregivers. The programme will be co-created by a network group comprising family carers of people with dementia and the members of the research team. Stage 3 will involve the conduct of a study to determine the feasibility of the programme, including its acceptability among family carers. The findings of the study will provide important new evidence on carer resilience and will inform policy, carer supports and interventions.

    Lay Summary

    Further information available at:

Types: Investments > €500k
Member States: Ireland
Diseases: Alzheimer's disease & other dementias
Years: 2016
Database Categories: N/A
Database Tags: N/A

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