The Kungsholmen Project

KP
The Kungsholmen Project

www.kungsholmenproject.se/
[email protected]

Data analysis ongoing| Closed to new patients

Sweden

Primary Samples: Stabilised samples (frozen or fixed)| Secondary samples:(derivatives of primary samples)| Secondary samples: plasma| Secondary samples: DNA

Yes, for all the cohort

Data are avalible on request

social interview, physical functioning, clinical examination, including geriatric, neurological and psychiatric assessment, cognitive assessment.

No

No

Alzheimer’s disease and other dementias||Neurodegenerative disease in general

Data is held as individual records
No
Data held on computer based records
No
Yes
Apply to PI or co-ordinator at resource| Access independent of collaboration with PI| Local/ regional access| National access| International access| Access for pilot studies permitted| RAccess restricted to peer-reviewed work| Resource has own ethics approval so usually no need for separate external ethics approval
Data made publicly available after a specified time point
Yes

Yes
To increase our understanding of the aging process and to identify preventive strategies that can lead to improved health and care of the elderly.

300+
Fratiglioni, et al. An active and socially integrated lifestyle in late life might protect against dementia. The Lancet Neurology. 2004| Rizzuto, et al. Lifestyle, social factors, and survival after age 75: population based study. BMJ. 2012.| Qiu C Twenty-year changes in dementia occurrence suggest decreasing incidence in central Stockholm, Sweden.

1,000-5,000 participants
Proxy interview in case of cognitive impairment
Longitudinal
death registry

No

01/10/1987
01/12/2000
Data analysis ongoing| Closed to new patients
Through links to medical records

Data summarised in database

No
Database on spreadsheet (e.g. excel)
Database on paper
The Kungsholmen Project
Already possible

Population Cohorts
Sweden
Alzheimer’s disease & other dementias|Neurodegenerative disease in general
2016