Sydney Memory and Ageing Study

MAS
Sydney Memory and Ageing Study

www.cheba.unsw.edu.au
[email protected]
NHMRC Australia
NHMRC Australia

Data collection ongoing|Data analysis ongoing|Closed to new patients

English

Australia

Primary samples: Supplied fresh| Primary Samples: Stabilised samples (frozen or fixed)|Secondary samples: plasma|Secondary samples: DNA|Secondary samples: RNA

If available for a subset please specify number of patients and % of total cohort

https://cheba.unsw.edu.au/project/sydney-memory-and-ageing-study

mulitiple

No

Age

Yes – funding applied for/funding awarded

Alzheimer’s disease and other dementias|Parkinson’s disease|Neurodegenerative disease in general

943

Data is held as individual records
No
Data held on computer based records
No
Yes
Access committee mechanism|Local/ regional access|National access|International access|Access to industry|Access for pilot studies permitted|Applicant needs to provide separate external ethics approval|Resource has own ethics approval so usually no need for separate external ethics approval
No requirement to make data publicly available

Yes
The Sydney Memory and Ageing Study investigates the rates and predictors of cognitive decline (MCI, dementia) in an ageing population.
Method of recruitment is unique as the cohort were recruited from the electoral roll (registration on the electoral roll is compulsory in Australia and this is a public document). Wide breadth of risk factors examined, e.g., neuroimaging, genetics, proteomics.
112
Megan Heffernan, UNSW, Alcohol Consumption and Incident Dementia: Evidence from the Sydney Memory and Ageing Study (2016)|Zixuan Yang, UNSW, Age-associated structural brain differences on MRI from eighth to eleventh decades of life (2016)|Perminder Sachdev, UNSW, The Sydney Memory and Ageing Study (MAS): methodology and baseline medical and neuropsychiatric characteristics of an elderly epidemiological non-demented cohort of Australians aged 70-90 years – 2010

1,000-5,000 participants
No
Prospective cohort|Longitudinal
through the study, medical records and other records or registers (e.g dental records, police records etc)

No

01/09/2005
08/01/2020
Data collection ongoing|Data analysis ongoing|Closed to new patients

Data summarised in database

No
Database on spreadsheet (e.g. excel)
No
Sydney Memory and Ageing Study
Already possible

Population Cohorts
Australia
Alzheimer’s disease & other dementias|Neurodegenerative disease in general|Parkinson’s disease & PD-related disorders
2016