Utilisation and costs of health and nursing services for elderly patients with multimorbidity in the German Statutory Health Insurance System – a observational cohort study

Title of the cohort
Utilisation and costs of health and nursing services for elderly patients with multimorbidity in the German Statutory Health Insurance System – a observational cohort study
Acronym for cohort
MultiCare2
Name of Principal Investigator

Title	Prof. Dr.
First name	Hendrik
Last name	van den Bussche

Address of institution where award is held

Institution	Department of Primary Medical Care, University Medical Center Hamburg-Eppendorf
Street Address	Martinistr. 52
City	Hamburg
Postcode	20246

Country
Germany
Website
www.uke.de/institute/allgemeinmedizin/index_46739.php
Contact email
[email protected]
Funding source
BMBF
1. The cohort includes, or expects to include, incidence of the following conditions

Alzheimer’s disease and other dementias
Parkinson’s disease

When studies on the above condition(s) are expected to become possible
Already possible
2a. Stated aim of the cohort
Analysis of medical and nursing services utilized by elderly patients with multimorbidity, estimation of costs of services of statutory medical and nursing care for elderly patients with multimorbidity
2b. Features distinguishing this cohort from other population cohorts

3a. i) Number of publications that involve use of cohort to date
0
3a. ii) Up to three examples of studies to date (PI, Institution, Title of Study)

3b. Publication list/link to where data or publications are accessible (if available)

3c. Information (i.e. research findings) expected to be gained from the population cohort

4a. Study criteria: age range of participants at recruitment

Age in years from:	65
To (‘until death’ if applicable):	until death

4b. Study criteria: inclusion criteria

4c. Study criteria: exclusion criteria
1. incompletely insured in the year 2004, 2. patients over 100 years, who did not consult any physician within 2004
5. Size of the cohort (i.e. number of participants enrolled)
More than 15,000
6a. Measures used to characterise participants
Age, gender, morbidity, nursing dependency, ambulatory services, inpatient services, therapeutic measures, medical equipment, surgical appliances, medication, costs, mortality
6b. Additional measures for participants with a clinical disorder

6c. Are there defined primary and secondary endpoints (e.g. defined health parameters)
No
7. Study design
Prospective cohort
8. Cases matched by

Other health assessment (specify) / N/A
no matching

9a. Does the study include a specialised subset of control participants
Yes
9b. If yes, description of specialised subset of control participants

10a. i) Data collection start date
01-01-2004
10a. ii) Data collection end date

10a iii) Data collection for this study is

Data collection ongoing
Data analysis ongoing

10b. Plans to continue the cohort study beyond the current projected end date

Yes – intend to apply for funding

11. Data collected

12. System in place to enable re-contact with patients for future studies

13a. Format and availability of data stored in a database

Language used:

13b. Format and availability of data held as individual records

Language used:

14a. Are data available to other groups
No
14b. Access policy/mechanisms for access if data are available to other groups

15. Data sharing policy specified as a condition of use
No policy exists
16a. Are tissues/samples/DNA available to other groups
No
16b. i) Description of available tissues/samples/DNA

16b. ii) Form available tissues/samples/DNA are supplied in

16b. iii) Is the access policy/mechanism for obtaining samples the same as that for obtaining data

17. Is information on biological characteristics available to other groups

Utilisation and costs of health and nursing services for elderly patients with multimorbidity in the German Statutory Health Insurance System – a observational cohort study

Population Cohorts
Germany
Alzheimer’s disease & other dementias|Parkinson’s disease & PD-related disorders