Category survey

Ultra-high field MRI 7T scanner (Cambridge University) Capital Infrastructure United Kingdom 2016    

The UK7T Network: developing the ultra-high field MRI platform for biomedical research. Capital Infrastructure United Kingdom 2016    

Parkinson’s UK Brain Bank Capital Infrastructure United Kingdom 2016    

UKDP: Integrated DEmentiA research environment (IDEA) Capital Infrastructure United Kingdom 2016    

National research infrastructure for biological and medical imaging (Czech-BioImaging) Capital Infrastructure Czech Republic 2016    

Sustainability for the National Institute of Mental Health Capital Infrastructure Czech Republic 2016    

Molecular Imaging Radiochemistry Research Infrastructure (MIRRI) Capital Infrastructure Finland 2016    

Human prion diseases: molecular characteristics www.cjd-goettingen.de [email protected] Data collection ongoing Germany Yes, for all the cohort Biomarkers, neuropsychological tests, genetic analyses, MRI, brain lesion profiles No Age Yes – intend to apply for funding Prion disease Yes Data to be…

Factors for disease progression in Alzheimer´s disease www.alzheimer.med.uni-goettingen.de [email protected] Germany Biomarkers, neuropsychological tests, genetic analyses, MRI, brain lesion profiles Progression rate Alzheimer’s disease and other dementias To determine the rate of progression into AD 0 1,000-5,000 participants Prospective cohort Factors…

GNC German National Cohort [email protected] Combined national and regional funding Combined national and regional funding At the planning stage Germany Primary Samples: Stabilised samples (frozen or fixed)| Secondary samples: plasma| Secondary samples: DNA| Secondary samples: RNA| Secondary samples: protein…

RISCA Prospective study of individuals at risk for spinocerebellar ataxia type 1, type 2, type 3 and type 6 [email protected] Data collection ongoing| Closed to new patients Germany Yes, for all the cohort Clinical scale, timed tests, MRI, electrophysiology…

EUROSCA-NHS European Spinocerebellar Ataxia Natural History Study [email protected] Closed to new patients Germany Yes, for all the cohort Yes – intend to apply for funding Spinocerebellar ataxia (SCA) No No requirement to make data publicly available 0 1,000-5,000 participants…

KORA Cooperative Health Research in the Augsburg Region [email protected] Data collection ongoing Germany please check the KORA website. We have an extensive phenotypic characterization (examinations, interview, questionnaires) including hundreds of variables. In addition, we have blood samples and other…

MAAS Maastricht Aging Study [email protected] Maastricht University Maastricht University Data analysis ongoing| Closed to new patients Dutch and English Netherlands See study website standard medical and cognitive tests No Yes – intend to apply for funding Alzheimer’s disease and…

NuAge Quebec Longitudinal Study on Nutrition and Successful Aging www.maelstrom-research.org/mica/study/nuage [email protected] CIHR and the Quebec network for Research on aging CIHR and the Quebec network for Research on aging Data analysis ongoing French and English Canada Primary Samples: Stabilised samples…

BDR Brains for Dementia Research [email protected] Alzheimer’s Research UK and Alzheimer’s Society in association with Medical Research Council Alzheimer’s Research UK and Alzheimer’s Society in association with Medical Research Council Data collection ongoing| Data analysis ongoing| Closed to new…

H70 H70 www.epinep.gu.se [email protected] VR, FORTE VR, FORTE At the planning stage| Data collection ongoing| Data analysis ongoing Swedish Sweden Yes, for all the cohort www.epinep.gu.se More than 1000 characteristics No Other health assessment Yes – intend to apply for…

PAQUID PAQUID [email protected] IPSEN France, Novartis Pharma France, CNSA (Caisse Nationale de Solidarité et d’Autonomie), Roche IPSEN France, Novartis Pharma France, CNSA (Caisse Nationale de Solidarité et d’Autonomie), Roche Data collection ongoing| Data analysis ongoing| Closed to new patients French…

AMI Integrated multidisciplinary approach/Agrica MSA IFR Public Health 99 [email protected] MSA (Gironde et caisse centrale), AGRICA MSA (Gironde et caisse centrale), AGRICA Data collection ongoing| Data analysis ongoing| Closed to new patients French France No [Author] Sociodemographic characteristics, lifestyle, medical…

PATH 20s Personality and Total Health (PATH) Through Life (20s Cohort) [email protected] or [email protected] National Health and Medical Research Council National Health and Medical Research Council Data collection ongoing| Data analysis ongoing| Closed to new patients English Austrailia Yes,…

PATH 40s Personality and Total Health (PATH) Through Life (40s cohort) [email protected] or [email protected] National Health and Medical Research Council National Health and Medical Research Council Data collection ongoing| Data analysis ongoing English Austrailia Yes, for all the cohort…

PATH 60s Personality and Total Health (PATH) Through Life (60s cohort) [email protected] or [email protected] National Health and Medical Research Council National Health and Medical Research Council Data collection ongoing| Data analysis ongoing English Austrailia Yes, for all the cohort…

ELSA English Longitudinal Studies of Ageing [email protected] Department of Health, Department for Work and Pensions, Department for Transport and National Institute on Aging Department of Health, Department for Work and Pensions, Department for Transport and National Institute on Aging…

NICOLA Northern Ireland Cohort for Longitudanal Study of Ageing [email protected] ESRC (wave 1) , Atlantic Philanthropies (wave 2) ESRC (wave 1) , Atlantic Philanthropies (wave 2) Data collection ongoing| Data analysis ongoing United Kingdom Secondary samples: DNA No Anthropometric…

UKHLS Understanding Society: UK Household Longitudinal Study www.understandingsociety.ac.uk [email protected] Core funding from ESRC, co-funding from UK government funders. Core funding from ESRC, co-funding from UK government funders. At the planning stage| Data collection ongoing| Data analysis ongoin English United Kingdom…

BCS70 1970 British Cohort Study www.cls.ioe.ac.uk/bcs70 [email protected] Core funding from ESRC, co-funding from MRC for age 46 biomedical sweep Core funding from ESRC, co-funding from MRC for age 46 biomedical sweep Data collection ongoing| Data analysis ongoing| Data collection ongoing…

NCDS National Child Development Study www.cls.ioe.ac.uk/ncds [email protected] Core funding from ESRC Core funding from ESRC At the planning stage | Data collection ongoing| Data collection ongoing| Data collection ongoing English United Kingdom Primary Samples: Stabilised samples (frozen or fixed)| Secondary…

STR Swedish Twin Registry ki.se/en/research/the-wedish-twin-registry [email protected] Multiple funders Multiple funders Data collection ongoing| Data analysis ongoing Swedish Sweden Primary Samples: Stabilised samples (frozen or fixed)| Secondary samples:(derivatives of primary samples)| Secondary samples: DNA No ki.se questionnaires, health and cognitive assessments,…

SATSA Swedish Adoption/Twin Study of Aging ki.se/en/meb/satsa-the-swedish-adoptiontwin-study-of-aging [email protected] VR, FORTE, NIA, JPND VR, FORTE, NIA, JPND Data analysis ongoing Sweden Yes, for all the cohort health and cognitive examinations, questionnaires No Age Alzheimer’s disease and other dementias Data is…

LUCAS Longitudinal Urban Cohort Ageing Study www.geriatrie-forschung.de [email protected] Data collection ongoing| Data analysis ongoing Germany No multidimensional dataset using self-administered questionnaires in waves with whole cohort plus multidimensional assessments with randomly selected subgroups Yes functional status, nursing care (Pflegestufe), death…

MultiCare2 Utilization and costs of health and nursing services for elderly patients with multimorbidity in the German Statutory Health Insurance System – a observational cohort study www.uke.de [email protected] BMBF BMBF Data collection ongoing| Data analysis ongoing Germany No Age, gender,…

Multicare1 Patterns of multimorbidity in primary health care – a prospective observational study www.uke.de [email protected] Data collection ongoing| Data analysis ongoing| Data collection ongoing| Data analysis ongoing Germany No Age, gender, migrant status, marital status, household type and size, education,…

AgeCoDe AgeCoDe Cohort [email protected] Closed to new patients Germany cognition, memory, depression, mobility, family anamnesis No Age Yes – intend to apply for funding Alzheimer’s disease and other dementias Yes Data to be made publicly available immediately Yes Prospective…

LANDSCAPE KNDD-LANDSCAPE [email protected] Data collection ongoing|Data analysis ongoing Germany Yes, for all the cohort Detailed neuropsychometric testing; UPDRS; clinical examination; cMRI No Age Alzheimer’s disease and other dementias|Parkinson’s disease Yes Data to be made publicly available immediately Yes To…

SHIP / SHIP-Trend Study of Health in Pomerania www.medizin.uni-greifswald.de [email protected] Data collection ongoing|Data analysis ongoing Germany No Interview, extensive medical examination, questionnaires, imaging (e.g. ultrasound, echocardiography, mri) No Other health assessment Alzheimer’s disease and other dementias|Neurodegenerative disease in general Yes…

PREDICT-PD www.predictpd.com [email protected] Parkinson’s UK Parkinson’s UK Data collection ongoing|Data analysis ongoing English United Kingdom Secondary samples: plasma|Secondary samples: DNA If available for a subset please specify number of patients and % of total cohort Noyce et al JNNP 2013;85:31-37,…

HUNT The Health Survey in Nord-Trøndelag [email protected] Public funding source for NTNU, but also for the wider research community nationally and internationally. Public funding source for NTNU, but also for the wider research community nationally and internationally. At the…

TILDA The Irish Longitudinal Study on Ageing www.tilda.ie [email protected]; [email protected] Department of Health, Ireland & Atlantic Philanthropies Department of Health, Ireland & Atlantic Philanthropies Data collection ongoing|Data analysis ongoing English Ireland Primary samples: Supplied fresh Yes, for all the cohort…

MPP Malmö Preventive Project [email protected] Data analysis ongoing|Closed to new patients English, Swedish Sweden Secondary samples:(derivatives of primary samples)|Secondary samples: plasma|Secondary samples: DNA Yes, for all the cohort Nilsson ED, Melander O, Elmståhl S, Lethagen E, Minthon L, Pihlsgård…

MDCS Malmö Diet and Cancer Study [email protected] Data analysis ongoing|Closed to new patients English, Swedish Sweden Secondary samples:(derivatives of primary samples)|Secondary samples: plasma|Secondary samples: DNA Yes, for all the cohort Gustavsson AM, Stomrud E, Abul-Kasim K, Minthon L, Nilsson…

SNAC-K and SNAC-K MRI Study Swedish National Study on Aging and Care in Kungsholmen www.snac-k.se [email protected] Swedish Government, VR Swedish Government, VR Data collection ongoing|Data analysis ongoing Swedish, English Sweden Primary Samples: Stabilised samples (frozen or fixed)| Secondary samples:(derivatives of…

MAS Sydney Memory and Ageing Study www.cheba.unsw.edu.au [email protected] NHMRC Australia NHMRC Australia Data collection ongoing|Data analysis ongoing|Closed to new patients English Australia Primary samples: Supplied fresh| Primary Samples: Stabilised samples (frozen or fixed)|Secondary samples: plasma|Secondary samples: DNA|Secondary samples: RNA If…

KP The Kungsholmen Project www.kungsholmenproject.se/ [email protected] Data analysis ongoing| Closed to new patients Sweden Primary Samples: Stabilised samples (frozen or fixed)| Secondary samples:(derivatives of primary samples)| Secondary samples: plasma| Secondary samples: DNA Yes, for all the cohort Data are avalible…

SNMC The Swedish National March Cohort [email protected] Cancerfonden Cancerfonden At the planning stage| Data collection ongoing| Data analysis ongoing English Sweden Antropometric measures, lifestyle factors, medical history. No None Yes – intend to apply for funding Neurodegenerative disease…

The Vallecas Project [email protected] [email protected] [email protected] Data collection ongoing| Data analysis ongoing Spain Primary samples: Supplied fresh| Primary Samples: Stabilised samples (frozen or fixed)| Secondary samples:(derivatives of primary samples)| Secondary samples: plasma| Secondary samples: DNA| Secondary samples: RNA| Secondary…

EVA Vascular Ageing, Decline in Brain and Cognitive Functions [email protected] MERCK, EISAI MERCK, EISAI Data analysis ongoing| Closed to new patients French France Yes, for all the cohort [Author]+OR+17130689[uid] Cognitive and vasular evaluation Yes Cognitive decline Neurodegenerative disease in general…

GAZEL 20,000 Volunteers for Medical Research [email protected] CCAS, IReSP, various grants CCAS, IReSP, various grants Data collection ongoing| Data analysis ongoing| Closed to new patients French and English France Primary Samples: Stabilised samples (frozen or fixed) If available for…

3C 3C study [email protected] Inserm, CNRS, universités, MGEN, CNAM-TS, ISPED, DGS, GIS Institut de longévité, FDF, Conseils régionaux d’Aquitaine et de Bourgogne, Ministère chargé de la recherche, Agence Inserm, CNRS, universités, MGEN, CNAM-TS, ISPED, DGS, GIS Institut de longévité,…

MEMENTO Determining Factors and The Progression of The Onset of Alzheimer’s Disease and Cognitive Impairment [email protected] | [email protected] Alzheimer’s Foundation Plan (Fondation Plan Alzheimer), PHRC, GE Healthcare, AVID Alzheimer’s Foundation Plan (Fondation Plan Alzheimer), PHRC, GE Healthcare, AVID Data collection…

CONSTANCES Cohort of Consultants from Health Examination Clinics [email protected] CNAMTS, DGS, Ministry of Health, Youth, Sport and Community Life in the Île-de-France region, IReSP, ANR, Public/private partnership through INSERM Transfer). CNAMTS, DGS, Ministry of Health, Youth, Sport and Community…